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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, October 16, 2009

Australian Trimethylaminuria Foundation now has a TMAU store for Australians

The Australian Trimethylaminuria Foundation is continuing it's aim of finding ways to raise funds for Dr John Christodolou's TMAU research proposal. As well as a TMAU store for the USA, it also now has a store for Australia. By clicking through the links and purchasing whatever you want, the ATF will get a % of the purchase. It's a good way of raising money within the community, for the purpose of research. and the best bit is that you are buying things you would want anyway.

Bluesky announced the Australian TMAU store in the ATF yahoo forum. Here is the text :

Hello Australian members,

Have you heard of the TMAU Store yet? At no cost to you, you can support the Australian Trimethylaminuria Foundation simply by "clicking through" the store of links (make sure you click the link off the store, first), and then buying online as you normally would. A percentage, usually about 10-15% of the sale price goes to the ATF.

The products and stores listed are not limited to those for Body Odor, and there is even a Shop by Store page:

However, the TMAU store is US-vendor specific-- or you would have to use "International shipping" (which can take a while to arrive).

Now there is also an Australian version of the store at:

New vendors on this page include AUS/NZ based businesses such as:
Discount Vitamin Express
Cool Gifts (AU)
Apple AU
Apex Rent A Car Australia
Circuit Central
Eight Hotels booking (Diamant Hotel Sydney and Canberra, Kirketon Hotel Sydney, Hotel Altamont Sydney, Pensione Hotel Sydney, Pensione Hotel Melbourne, Cosmopolitan Hotel Melbourne)
CheaperThanHotels (last minute deals)

there are a bunch more for Travel, Insurance, Vitamins, Baby, Pets, Auto etc.
You can still shop through the main "US-based" TMAU Store ( ) and choose International shipping, most of the stores there provide that option.

Blue Sky


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