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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Friday, October 2, 2009

Introducing the rrr-tmau.org fundraising website for the NORD TMAU Fund

tmau fundCurrent total : $6350
Target : $30000

Cheryl Marshall, who got NORD to start a TMAU Fund, has teamed up with a few others to come up with a website to encourage fundraising for the NORD TMAU Fund. $6350 has been raised already, and with an online presence it's hoped the $30000 target is achieved quicker. Thanks to Cheryl and the team, and also to all donators. This is your chance to make research happen.

Message from Cheryl on the yahoo TMAU forum

Hello All
We are pleased to announce the launch of an exciting new fund raising campaign to for the NORD Research Fund.
The RESEARCHING FOR RESEARCH RESOURCES CHALLENGE is aimed at raising as much funds as we can.
Several people have pledged various amounts and we invite everyone to pledge what they can-do not feel that you have to give a certain amount-it is what you are able to do.
This challenge requires us to reach out to our family, friends, co-workers - let them know that with their help we will be able to find a cure for TMAU.
Let us commit to making a difference as we go forward with this new exciting challenge. I invite everyone to visit our new Fund raising site: www.rrr-tmau.org
From this site you will be able to track our progress, download our solicitation letter and read inspirational stories of those who are giving to our effort as we Reach for our Research Resources.
Together we can get it done !!
Thanks
Cheryl
How the NORD donation page would look when donating online. You could also notify rrr-tmau.org of your contribution (anonymously or not) so that they can update the amount on their website.

Watch Cheryl in 'Mystery Diagnosis' TMAU episode

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