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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, October 2, 2009

Introducing the fundraising website for the NORD TMAU Fund

tmau fundCurrent total : $6350
Target : $30000

Cheryl Marshall, who got NORD to start a TMAU Fund, has teamed up with a few others to come up with a website to encourage fundraising for the NORD TMAU Fund. $6350 has been raised already, and with an online presence it's hoped the $30000 target is achieved quicker. Thanks to Cheryl and the team, and also to all donators. This is your chance to make research happen.

Message from Cheryl on the yahoo TMAU forum

Hello All
We are pleased to announce the launch of an exciting new fund raising campaign to for the NORD Research Fund.
The RESEARCHING FOR RESEARCH RESOURCES CHALLENGE is aimed at raising as much funds as we can.
Several people have pledged various amounts and we invite everyone to pledge what they can-do not feel that you have to give a certain amount-it is what you are able to do.
This challenge requires us to reach out to our family, friends, co-workers - let them know that with their help we will be able to find a cure for TMAU.
Let us commit to making a difference as we go forward with this new exciting challenge. I invite everyone to visit our new Fund raising site:
From this site you will be able to track our progress, download our solicitation letter and read inspirational stories of those who are giving to our effort as we Reach for our Research Resources.
Together we can get it done !!
How the NORD donation page would look when donating online. You could also notify of your contribution (anonymously or not) so that they can update the amount on their website.

Watch Cheryl in 'Mystery Diagnosis' TMAU episode


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