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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, November 10, 2009

Christmas body odor and halitosis meet-up 2009 in London invitation

12th DEC 09
12:00 noon
All Bar One in Leicester Square

A Christmas meet-up 2009 in London invitation posted in the Body Odor Support Forum from Jan (Snoopy39):

Current number interested in attending : 10

Just to let everyone know we are having a Christmas get together again this year and have volunteered to help Arun organise it. Have e-mailed or pmed most people about it already but just in case thought I would post the invitation here too. We had the first one last year which went down well (from what I can remember, hic!!!) and thought we would do it again.

We will be meeting on Saturday 12th December from 12 onwards at All Bar One in Leicester Square, London as this is a central venue and easy for everyone to find. Last year we stayed here for a few hours before moving on for a meal and then more drinks and this year will be more of the same. Just to emphasise that this is a social event and a relaxed get together with no formal agenda.

Everyone is welcome. Please pm me/ e-mail me on or contact Arun if you are coming along. Also feel free to contact me with any questions.

Cheers, Jan

If you would like to have a Christmas meetup you could post about it on the forum or you can promote it here


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