Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, December 30, 2009

Nashville 2010 Meet-up : YOU CAN BOOK YOUR SUITE

USA Body Odor & Halitosis get together
Embassy Suites
Nashville Airport Hotel
19th, 20th, 21st March 2010

Nashville: Have you booked ?

The time has come, and we can finally book our suite for our Nashville 2010 Body Odor and Halitosis Meet-Up at the Embassy Suites Nashville-Airport Hotel to be held on Saturday and Sunday, March 20th and 21st, 2010. The hotel has guaranteed us a rate of $99/night for the 19th, 20th and 21st of March, and may also extend the rate (subject to availability) for 2 days earlier and/or 2 days later if you book early enough. Bookings can be done online or over the phone, but extensions are offered only over the phone.

Special Accounts: MEBO Research

Booking Group/Convention Code: MBR
I have verified with the Sales Manager that no funds will be held on your credit card when using it to guarantee your booking. Embassy Suites will only use your credit card to confirmed your reservation. You do not have to pay, your credit card will not be charged, until you check-out after your stay, and there is no cancellation fee up to 6:00pm on the first day of your stay.

Booking options:

1. ONLINE RESERVATIONS:
for the $99/night rates

Availability dates: anytime between 19MAR2010 and 22MAR2010
Smoking or Non-Smoking
King or Two Beds (double beds), or No Preference

Special Accounts: Group/Convention Code: MBR

2. PHONE RESERVATIONS: In you wish to reserve for the $99/night rate two days before or two days after subject to availability, you need to call Reservations at, 1-615-871-0033 or 1-800-HILTONS (1-800-445-8667)

Please see the following posts for more specific details about this meetup and accommodations.


Rates per Suite
(Single and Double Rate)
King bed Non Smoking Suite $99/night
Two Double Bed Non Smoking Suite $99/night
Governors Suites Non Smoking Suite $150


Room rates are quoted net non commissionable and exclusive of local taxes and fees.

Quoted rates will be offered, based on availability, to meetup attendees 2 days before and 2 days after the above dates.

Room rates include : complimentary daily full breakfast per person, and complimentary daily 2-hour Manager’s Reception in the evenings with alcoholic and non-alcoholic beverages and snacks, and complimentary airport shuttle.


If you need assistance in transportation to the meet-up from your home, such as looking for anyone interested in carpooling, or in getting good air fares, please send me an email.


I do hope you can join us! It will be a very worthwhile and meaningful experience for us all! See you there.

María de la Torre

0 comments:

Post a Comment