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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Thursday, December 31, 2009

2010 : the possibilities for the body odor and halitosis community this year

So with a review of the year already posted, it is time to look to the future year, and the possibilities for the body odor and halitosis community. Of course the big change over the last decade has been the internet, which almost makes anything possible. Together we can harnass the power of the internet to progress in the sphere of body odor and halitosis which has probably been a curse on humanity since the beginning of time (apparently the FMO3 enzyme along with the other detox enzymes would have been part of us when we were a primordial soup).

With the potential of the internet, anything would seem possible in the search for cures. Also over the next decade, Gene Therapy is going to play a miraculous role in genetic disorders. The main question about a systemic body odor such as trimethylaminuria is ... has anyone seriously done anything to solve it ? The answer would be no. Partly because it is seen as a rarity, and partly because anyone who has had an interest in the subject probably only had a passing interest, and it has never really been of primary interest except at momentous moments (such as the ability to discover genes over the last decades).

MeBO Research & The blog : MeBO hopes to be like a 'SWAT' team, either promoting small research itself or promoting research elsewhere, as well as coming up with ideas for campaigns etc. It hopes to be self-prophesising, in that the aims naturally develop due to momentum. The blog will continue to be a presence on the internet, raising awareness and acting as a contact point.

The community : With the founding of bodyodorsupport.com, there is now a fixed official presence on the internet for the community. Hopefully it will be a place where ideas can be discussed, such as campaigns and petitions or whatever, for instance to influence poiticians. Meetups are also gathering pace, and this March there will be an attempt to hold a structured Body Odor and halitosis conference in Nashville. Experts will be contacted to see if they would do lectures over the internet, but if no expert helps, then it will be a big fun meetup. Perhaps someday the community could have a politician 'patron'. Some will be surprised to realise that this January will be the 2nd anniversary of the Conference Calls, begun by Cabel Hall in 2007. It is incredible to think that this lifeline is turning 2.

Should old acquaintance be forgot,
And never brought to mind
Should old acquaintance be forgot,
And days long gone

For old long ago, my dear,
For old long gone,
We'll drink a cup of kindness yet,
For old long gone
And so what is possible over the next year ?

Research : Hopefully some inroads can be made into research of body odor and halitosis. Particularly systemic body odor and halitosis, which are currently not accepted or widely known about. Probably an ideal goal would be an International Body Odor and Halitosis Research Center and clinic, since this would encompass all forms of B.O. and halitosis, and the researchers would then discover many are systemic. MeBO will continue small unofficial trials, in order to provide evidence and also to look for patterns.

NORD TMAU Fund : With the backing of rrr-tmau.org, there is the real possibility that the NORD TMAU Fund could reach its target of $35K this year. It is unclear how the research is implemented, but it seems that reaching the $35K means NORD put out requests for proposals and also that millions of $ may then be available to the researchers.

And so as the year draws to a close and a new decade begins, we can at least say there has never been a better time to have body odor and halitosis!

HAPPY NEW YEAR TO ONE AND ALL!

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