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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, December 2, 2009

Nashville Body Odor and Halitosis Meet-up 20th-21st March 2010 (provisional arrangements)


ROAD TRIP TO
THE NASHVILLE MEETUP 2010

"...No, the meetup is not in Jackson. Johnny Cash and wife, June Carter sang that song at the Grand Ole Opry in Nashville..."

DATE CHANGED TO 20TH AND 21ST MARCH 2010

For a few years now, Arun Nagrath has successfully hosted meetups in the UK, which over the years have grown in strength and numbers. Now it is time for the USA community to also experience the transformation that comes with the special bond created with a 'pilgrimage' to our meetups. From the East to the Western Hemispheres all are invited to experience with us our Southern style reunion with our first Annual Body Odor and Halitosis USA Meetup in Nashville, Tennessee, this March 2010. For the time being, it is scheduled for Saturday, March 13th and Sunday March 14th.

The hotel provisionally chosen is the Embassy Suites Nashville - Airport, for potential price reasons and location, (group rates still to be negotiated). The atrium is very big with a very high ceiling allowing for excellent ventilation and is full of ‘nooks’ (or sitting areas) that make for a great place to relax and meet as a group will have relative privacy in our discussions.

This Resort is an all-suite hotel featuring a 2 room suite with either 2 double-beds or 1 king bed, a marble vanity/sink, hair dryer, and TV in the bedroom, and a door separates the parlor/living room area which is has a sleeper sofa, two chairs, a wet bar area with coffee/tea maker and microwave, refrigerator, TV, and activity table, ironing board, and of course, a bathroom. This suite can accommodate three people very comfortably. Other amenities include an indoor swimming pool and heated whirlpool, as well as an onsite Fitness Center. There is high-speed internet access throughout the hotel and wireless internet access, a Business Center with complimentary internet, and a Meeting Room.

Depending on the number of persons attending, we intend to negotiate for a group rate that includes a complimentary cooked-to-order full breakfast each morning and a daily Manager’s Reception Cocktail to relax and unwind at the end of the day.

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