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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, December 2, 2009

Nashville Body Odor and Halitosis Meet-up 20th-21st March 2010 (provisional arrangements)


ROAD TRIP TO
THE NASHVILLE MEETUP 2010

"...No, the meetup is not in Jackson. Johnny Cash and wife, June Carter sang that song at the Grand Ole Opry in Nashville..."

DATE CHANGED TO 20TH AND 21ST MARCH 2010

For a few years now, Arun Nagrath has successfully hosted meetups in the UK, which over the years have grown in strength and numbers. Now it is time for the USA community to also experience the transformation that comes with the special bond created with a 'pilgrimage' to our meetups. From the East to the Western Hemispheres all are invited to experience with us our Southern style reunion with our first Annual Body Odor and Halitosis USA Meetup in Nashville, Tennessee, this March 2010. For the time being, it is scheduled for Saturday, March 13th and Sunday March 14th.

The hotel provisionally chosen is the Embassy Suites Nashville - Airport, for potential price reasons and location, (group rates still to be negotiated). The atrium is very big with a very high ceiling allowing for excellent ventilation and is full of ‘nooks’ (or sitting areas) that make for a great place to relax and meet as a group will have relative privacy in our discussions.

This Resort is an all-suite hotel featuring a 2 room suite with either 2 double-beds or 1 king bed, a marble vanity/sink, hair dryer, and TV in the bedroom, and a door separates the parlor/living room area which is has a sleeper sofa, two chairs, a wet bar area with coffee/tea maker and microwave, refrigerator, TV, and activity table, ironing board, and of course, a bathroom. This suite can accommodate three people very comfortably. Other amenities include an indoor swimming pool and heated whirlpool, as well as an onsite Fitness Center. There is high-speed internet access throughout the hotel and wireless internet access, a Business Center with complimentary internet, and a Meeting Room.

Depending on the number of persons attending, we intend to negotiate for a group rate that includes a complimentary cooked-to-order full breakfast each morning and a daily Manager’s Reception Cocktail to relax and unwind at the end of the day.

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