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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, November 30, 2009 conference starts tomorrow in New York

The tragedy about systemic body odors and halitosis is that even the medical and political system are mostly unaware the problem exists, and so it is unlikely any research will be forthcoming under the instructions of those fields of society. We will need to find ways of influencing the medical system and politics, such as lobbying (as well as organizing ourselves for any 'self-help' attempts, with MeBO Research being an example).

Fortunately there are some organizations with ties to the medical and political system that have both the financial backing and prestige to make change capable. One such organization would seem to be, which is holding a 'Partnership for cures' conference in New York on 1-3 December. This will bring about the meeting of researchers and medical foundations, pharmaceutical and biotechnology companies,private investor and venture capitalist groups, and philanthropists; to arrange research and funding into deadly or debilatating diseases. is part of the Milken Institute, an economic thinktank which had the foresight to instigate such a needed service in the internet age.

So there may not be any discussion about trimethylaminuria, systemic body odors, or systemic halitosis at the conference this year, but at least we are now aware of the organization and are learning about the infrastructure of medical research.


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