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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, January 23, 2010

The Nashville Body Odor & Halitosis meetup and webinar to become two separate events

After much looking at the options and cost of having the webinar during our Nashville Body Odor and Halitosis Meetup, it appears that the best option may be to make them into two separate events. There are two main reasons for this decision, and that is because a conference room and equipment would be costly, while it would probably be easier and more comfortable for everyone to participate in the webinar on our own computers. The second reason is because a meetup can be a very life-altering experience at a socio-emotional and spiritual level, and there simply would not be enough time to fit in a webinar in this process when some people can only stay for one day. By doing it separately, we can give our undivided attention to each and perfect each one as much as possible.

If the 2010 International Body Odor and Halitosis Webinar Series is held at a later time, the only expense would be to get a good webinar host program, for which we would need to fundraise. We could present one expert at a time with the whole community from around the world joining the meeting from the comfort of our own homes. This way, there would not be any time restraints and the expert can feel more at ease in the process. Each expert will be asked if they consent to being recorded while doing the presentation, and if so, it will be permanently presented in the MEBO Research website. The webinar format and schedule has yet to be decided but is hoped to be a few webinars in the springtime. So far one has agreed to a webinar for sure, another couple seem very likely to agree to give us a slideshow, and another 4 could be possible guests as well. Hopefully this will establish a rapport between experts and sufferers.

During the meetup as we discuss our conditions, usually many questions arise. I will be making a note of these questions and may present them to our experts before their presentation so they may address them if they choose to do so. Each expert will be asked if they would also like to have a Q & A session after their presentation, and perhaps later in the year a panel of experts could do a Q&A session with the viewers much like was done at the TMAU Workshop in 2002. We will have to see what experts feel comfy with.


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