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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, January 23, 2010

The Nashville Body Odor & Halitosis meetup and webinar to become two separate events

After much looking at the options and cost of having the webinar during our Nashville Body Odor and Halitosis Meetup, it appears that the best option may be to make them into two separate events. There are two main reasons for this decision, and that is because a conference room and equipment would be costly, while it would probably be easier and more comfortable for everyone to participate in the webinar on our own computers. The second reason is because a meetup can be a very life-altering experience at a socio-emotional and spiritual level, and there simply would not be enough time to fit in a webinar in this process when some people can only stay for one day. By doing it separately, we can give our undivided attention to each and perfect each one as much as possible.

If the 2010 International Body Odor and Halitosis Webinar Series is held at a later time, the only expense would be to get a good webinar host program, for which we would need to fundraise. We could present one expert at a time with the whole community from around the world joining the meeting from the comfort of our own homes. This way, there would not be any time restraints and the expert can feel more at ease in the process. Each expert will be asked if they consent to being recorded while doing the presentation, and if so, it will be permanently presented in the MEBO Research website. The webinar format and schedule has yet to be decided but is hoped to be a few webinars in the springtime. So far one has agreed to a webinar for sure, another couple seem very likely to agree to give us a slideshow, and another 4 could be possible guests as well. Hopefully this will establish a rapport between experts and sufferers.

During the meetup as we discuss our conditions, usually many questions arise. I will be making a note of these questions and may present them to our experts before their presentation so they may address them if they choose to do so. Each expert will be asked if they would also like to have a Q & A session after their presentation, and perhaps later in the year a panel of experts could do a Q&A session with the viewers much like was done at the TMAU Workshop in 2002. We will have to see what experts feel comfy with.


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