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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Sunday, January 24, 2010

Hello Mystery Diagnosis TMAU viewers

Did you just watch about TMAU
on Mystery Diagnosis ?
Hello everyone who has just watched brave Cheryl Marshall's TMAU story on Mystery Diagnosis. The video was on youtube but has sadly been removed. You may be surprised to find out that you are far from being alone. Welcome to the community. We are a blog about systemic body odors; especially trimethlyaminuria, which many of our readers have. Currently there are very few testers for this disorder, and 99.9% of MD's will be unaware of it. Stay around to learn more about the problem and meet the online body odor community. We are all in the same boat and together we can learn to organize ourselves into a powerful lobbying group to get research into systemic body odors. An ideal goal would be to get the NIH to open an International Body Odor and Halitosis research center and clinic.

In the meantime here is some brief information :

Trimethylaminuria information on our MeBO Research website
ABC Primetime TV video about a TMAU case
Main online TMAU forum

Testing for TMAU :
Normally there were 3 or 4 USA TMAU testers, but currently there is only one known : Arkansas Childrens Hospital

Others associated with TMAU but currently not testing :
HBRI.org
Dr Paul Fennessey at Denver University of Colorado Health Science Center
Monell Chemical Senses Center
McGill University Health Centre - Montreal Children's Hospital

If you have any ideas how we can get society to recognise the commonness of this problem and start research, please let us know. Welcome.

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