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MEBO - UBIOME study 2018

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

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Blog Archive

Sunday, January 24, 2010

Hello Mystery Diagnosis TMAU viewers

Did you just watch about TMAU
on Mystery Diagnosis ?
Hello everyone who has just watched brave Cheryl Marshall's TMAU story on Mystery Diagnosis. The video was on youtube but has sadly been removed. You may be surprised to find out that you are far from being alone. Welcome to the community. We are a blog about systemic body odors; especially trimethlyaminuria, which many of our readers have. Currently there are very few testers for this disorder, and 99.9% of MD's will be unaware of it. Stay around to learn more about the problem and meet the online body odor community. We are all in the same boat and together we can learn to organize ourselves into a powerful lobbying group to get research into systemic body odors. An ideal goal would be to get the NIH to open an International Body Odor and Halitosis research center and clinic.

In the meantime here is some brief information :

Trimethylaminuria information on our MeBO Research website
ABC Primetime TV video about a TMAU case
Main online TMAU forum

Testing for TMAU :
Normally there were 3 or 4 USA TMAU testers, but currently there is only one known : Arkansas Childrens Hospital

Others associated with TMAU but currently not testing :
HBRI.org
Dr Paul Fennessey at Denver University of Colorado Health Science Center
Monell Chemical Senses Center
McGill University Health Centre - Montreal Children's Hospital

If you have any ideas how we can get society to recognise the commonness of this problem and start research, please let us know. Welcome.

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