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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, January 7, 2010

TMAU urine test available direct in the UK for £191 : Mullhaven Medical Laboratory

Update : Mullhaven has now closed
MEBO are offering the Sheffield test via Biolab clinic direct to the public for £155 (UK) and £160 (Europe). See our post on UK TMAU urine test for details

TMAU urine test in the UK
Available free on the NHS

Now available direct by mail from Mullhaven Medical Laboratory for £191
One of MeBO's aims is to make the Trimethylaminuria tests more widely available and accessible. In the UK, we have managed to get the TMAU urine test put in the catalogue of The Doctors Laboratory lab (but a referral is necessary), and Medichecks (direct, but they charge £275). The only TMAU urine tester in the UK is Nigel Manning at Sheffield Childrens Hospital, but a referral is needed. All the above labs source the test from the Sheffield lab. The Sheffield Lab allows private Drs to test for approximately £136.

MeBO is pleased to announce that a lab in Bedford, England, Mullhaven Medical Laboratory,, has kindly agreed to let anyone do the Sheffield TMAU urine test direct by mail, so no need for a doctor's referral, for £191 (which is a lot cheaper than Medichecks'). This is ideal for anyone who just wants to do the urine test at home without a doctor's referral.

The lab has already put the test on their website list, and you can place your order online. (click on the letter 'T' for the TMAU (Trimethylaminuria - Fish Odour Syndrome) test.

Always remember that the TMAU urine test is free on the NHS.


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