Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, January 7, 2010

TMAU urine test available direct in the UK for £191 : Mullhaven Medical Laboratory

Update : Mullhaven has now closed
MEBO are offering the Sheffield test via Biolab clinic direct to the public for £155 (UK) and £160 (Europe). See our post on UK TMAU urine test for details

TMAU urine test in the UK
Available free on the NHS

Now available direct by mail from Mullhaven Medical Laboratory for £191
One of MeBO's aims is to make the Trimethylaminuria tests more widely available and accessible. In the UK, we have managed to get the TMAU urine test put in the catalogue of The Doctors Laboratory lab (but a referral is necessary), and Medichecks (direct, but they charge £275). The only TMAU urine tester in the UK is Nigel Manning at Sheffield Childrens Hospital, but a referral is needed. All the above labs source the test from the Sheffield lab. The Sheffield Lab allows private Drs to test for approximately £136.

MeBO is pleased to announce that a lab in Bedford, England, Mullhaven Medical Laboratory,, has kindly agreed to let anyone do the Sheffield TMAU urine test direct by mail, so no need for a doctor's referral, for £191 (which is a lot cheaper than Medichecks'). This is ideal for anyone who just wants to do the urine test at home without a doctor's referral.

The lab has already put the test on their website list, and you can place your order online. (click on the letter 'T' for the TMAU (Trimethylaminuria - Fish Odour Syndrome) test.

Always remember that the TMAU urine test is free on the NHS.


Post a Comment