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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, January 27, 2010

Trimethylaminuria testing in the USA : Denver Colorado

update (Oct 2016) :
Hospital websites tend to change their sites and not forward the old links (meaning old links are dead links). Also with TMAU, they tend to not be 'user-friendly' to the public. We try our best to keep the latest links (if there are any) but the changed links are beyond our control.
If you do know of 'latest live links', feel free to let us know by email or in the comments section.

This is the info we have for the urine (phenotype) and blood (DNA) test available to order through a physician from the University of Colorado in Denver. Dr Paul Fennessey works on this campus, but he does not seem to be involved with the new testing labs, but probably had a role in them adding TMAU testing to their catalog. TMAU was first diagnosed by Drs on the campus in 1970, and so has a long history of testing for TMAU.

Last known prices (2012)
The urine test is $250 and the blood (DNA) test is approximately $600.

They require a Doctor to request an order, but it seems TMAU experts are aware the lab is testing and may help to order the test.

Last update : Oct 2016
TMAU urine and DNA testing.
Childrens Hospital Colorado.
aka : Uni of Colorado Hospital Denver.

Only info we have (tell us if you know more).
Only info they have about TMAU testing on website : (quote from their site).

TMAu Testing Inquiries:
All TMAu testing is required to be ordered by an authorized physician. Please review the collection and handling instructions for TMA samples before sending in samples. If there are questions regarding testing for TMAu please have the authorized provider contact us at or 720-777-0500.

TMAu Coll-Handl Instructions (.pdf)
Link to page : Denver TMAU info 


Anonymous said...

your website links to testing pages are down

Oct 10, 2016, 11:19:00 AM
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