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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, January 27, 2010

Trimethylaminuria testing in the USA : Denver Colorado



update (Oct 2016) :
Hospital websites tend to change their sites and not forward the old links (meaning old links are dead links). Also with TMAU, they tend to not be 'user-friendly' to the public. We try our best to keep the latest links (if there are any) but the changed links are beyond our control.
If you do know of 'latest live links', feel free to let us know by email or in the comments section.



This is the info we have for the urine (phenotype) and blood (DNA) test available to order through a physician from the University of Colorado in Denver. Dr Paul Fennessey works on this campus, but he does not seem to be involved with the new testing labs, but probably had a role in them adding TMAU testing to their catalog. TMAU was first diagnosed by Drs on the campus in 1970, and so has a long history of testing for TMAU.

Last known prices (2012)
The urine test is $250 and the blood (DNA) test is approximately $600.

They require a Doctor to request an order, but it seems TMAU experts are aware the lab is testing and may help to order the test.

Last update : Oct 2016
TMAU urine and DNA testing.
Childrens Hospital Colorado.
aka : Uni of Colorado Hospital Denver.

Only info we have (tell us if you know more).
Only info they have about TMAU testing on website : (quote from their site).

TMAu Testing Inquiries:
All TMAu testing is required to be ordered by an authorized physician. Please review the collection and handling instructions for TMA samples before sending in samples. If there are questions regarding testing for TMAu please have the authorized provider contact us at

LabClientServices@childrenscolorado.org or 720-777-0500.

TMAu Coll-Handl Instructions (.pdf)
Link to page : Denver TMAU info 

1 comments:

Anonymous said...

your website links to testing pages are down

Oct 10, 2016, 11:19:00 AM
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