Thanks to the lady who appeared on the UK TV show 'Embarrassing Bodies' with a case of trimethylaminuria. In her case, she was '45' for her first TMA reading, and then they put her on the TMAU diet and did a follow up test in which she was down to a reading of '15' (below 10.9 is 'normal' in the UK). It goes to show the benefit of monitoring, although doing the clinical test for monitoring is obviously not practical. This is why MeBO is looking into such areas as a scent dog or TMAU urine dipstick paper tests.
Wanting to test in the UK ? Contact Nigel Manning at Sheffield Children's Hospital for advice, the only lab tester in the UK
To contact Dr Robin Lachmann : robin.lachmann@uclh.nhs.uk
If you wish to test without a Dr but having to pay for it (around £193)
contact Mullhaven lab (they send it to Nigel Manning)
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