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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, April 29, 2010

Genetics of Hyperhidrosis Study

This blog and MeBO are generally aimed at learning about systemic body odor and halitosis, but if we hear of any interesting news about bromhidrosis, we are happy to post it.

Whilst hyperhidrosis itself does not mean the person will be prone to bromhidrosis, some feel that hyperhydrosis naturally leads to their bromhidrosis problem.

In this months NORD newsletter, they have written that the Albert Einstein College of Medicine of Yeshiva University and Montefiore Medical Center is conducting research to see if it may be a genetic disorder :

Genetics of Hyperhidrosis Study

Researchers at Albert Einstein College of Medicine of Yeshiva University and Montefiore Medical Center are seeking individuals affected with hyperhydrosis to determine if the condition is inherited and if so, to identify the responsible gene(s). Identification of the responsible gene may help to determine the underlying cause of hyperhidrosis and be used to develop an effective therapy or even a cure. Study participants are asked to sign HIPAA and informed consent forms, complete a medical and family history form, and submit a sample of their buccal cells. This is accomplished by rinsing the mouth with mouthwash and spitting into a small container. No travel is required and there is no cost to participants. Kits are sent through the mail and a stamped, self addressed envelope is provided for study materials to be returned. For more information contact Betsy K. Vibert, MS, CGC at 877-444-2525 (toll free) or 718-430-3739.


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