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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, April 29, 2010

Genetics of Hyperhidrosis Study

This blog and MeBO are generally aimed at learning about systemic body odor and halitosis, but if we hear of any interesting news about bromhidrosis, we are happy to post it.

Whilst hyperhidrosis itself does not mean the person will be prone to bromhidrosis, some feel that hyperhydrosis naturally leads to their bromhidrosis problem.

In this months NORD newsletter, they have written that the Albert Einstein College of Medicine of Yeshiva University and Montefiore Medical Center is conducting research to see if it may be a genetic disorder :

Genetics of Hyperhidrosis Study

Researchers at Albert Einstein College of Medicine of Yeshiva University and Montefiore Medical Center are seeking individuals affected with hyperhydrosis to determine if the condition is inherited and if so, to identify the responsible gene(s). Identification of the responsible gene may help to determine the underlying cause of hyperhidrosis and be used to develop an effective therapy or even a cure. Study participants are asked to sign HIPAA and informed consent forms, complete a medical and family history form, and submit a sample of their buccal cells. This is accomplished by rinsing the mouth with mouthwash and spitting into a small container. No travel is required and there is no cost to participants. Kits are sent through the mail and a stamped, self addressed envelope is provided for study materials to be returned. For more information contact Betsy K. Vibert, MS, CGC at 877-444-2525 (toll free) or 718-430-3739.


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