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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, April 8, 2010

Hand-held VOC P.I.D. detector for detecting body odor chemicals

A main problem with systemic body odor in particular, is the inability for the sufferer to smell themselves, and likewise with any 'loved ones' of the sufferer. The reason for this selective anosmia is currently unknown. Because of this, since most systemic body odor cases are likely to be transient, being able to monitor the smells would be very useful. Particularly in finding out which chemicals are responsible for the smells (e.g. trimethylamine).

There will be no specific detector on the market for detecting body odors, under the premise (probably wrongly) that there is not a market for it. For possible experimental alternatives, we are looking at other detectors on the market for certain industries.

A methane detector
At the moment our assumption is something like a Volatile Organic Compound Photo Ionization Detector, such as made by Rae Systems. In our case, perhaps a detector that can sense chemicals in parts per billions would be most suited. At the moment the most suitable portable VOC PID would seem to be one like the ppbRae 3000, which retails at around $6000. It can be rented out, probably at around $300 a week.

Maybe someday we can rent such a detector, for say a meetup, or to study someone over a week. We must assume the detector may not be sensitive enough for such a use, but be hopeful that it is.


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