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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Monday, April 5, 2010

MeBO-Biolab gut dysbiosis study : Tester 6 results

As part of MeBO Research's mission to proactively investigate systemic body odors, it was decided to do a small study looking at some markers of gut dysbiosis to see if there was any pattern, with the participants kindly paying for their own tests. So far it does look as if a sign of gut yeast infection and increased gut permeability to varying degrees are relatively common, although nothing conclusive can be said. While the study is not logistically reliable (for instance, we cannot be sure if each person has the same cause of their body odor), it is seen as a starting point in getting the community to proactively use testing to get answers.

Here are the results of tester 6.


Tester 6
Male
early 30's
Odor problem:
Systemic body odor for over 10 years. Ammonia/fecal smell
Gut problems
Bloating, Constipation, GERD/reflux/ heartburn, Stomach or lower abdominal pain. Craves carbohydrates
Other comments
It's worse when raining, with stomach pain, alcohol, less than eight hours sleep a lot worse
Trimethylaminurianot tested
Results :
Tester 6
Gut FermentationEthanol is mildly raised at 22 (under 22 is normal).
Gut permeability raised at 242 molecular weight, which is unusual
body odor leaky gut study
Indicans
D-lactate
Negative
8 (normal is below 60)

Anyone wishing to participate in the study can do so by filling out the MeBO-Biolab systemic body odor and gut dysbiosis questionaire. The cost for all tests including B2, which has been added) would be £170.

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