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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, April 5, 2010

MeBO-Biolab gut dysbiosis study : Tester 6 results

As part of MeBO Research's mission to proactively investigate systemic body odors, it was decided to do a small study looking at some markers of gut dysbiosis to see if there was any pattern, with the participants kindly paying for their own tests. So far it does look as if a sign of gut yeast infection and increased gut permeability to varying degrees are relatively common, although nothing conclusive can be said. While the study is not logistically reliable (for instance, we cannot be sure if each person has the same cause of their body odor), it is seen as a starting point in getting the community to proactively use testing to get answers.

Here are the results of tester 6.

Tester 6
early 30's
Odor problem:
Systemic body odor for over 10 years. Ammonia/fecal smell
Gut problems
Bloating, Constipation, GERD/reflux/ heartburn, Stomach or lower abdominal pain. Craves carbohydrates
Other comments
It's worse when raining, with stomach pain, alcohol, less than eight hours sleep a lot worse
Trimethylaminurianot tested
Results :
Tester 6
Gut FermentationEthanol is mildly raised at 22 (under 22 is normal).
Gut permeability raised at 242 molecular weight, which is unusual
body odor leaky gut study
8 (normal is below 60)

Anyone wishing to participate in the study can do so by filling out the MeBO-Biolab systemic body odor and gut dysbiosis questionaire. The cost for all tests including B2, which has been added) would be £170.


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