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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

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Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


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Analysis can take 6/8 weeks
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Blog Archive

Tuesday, June 1, 2010

More about the recent Olfactory Reference Syndrome press briefing by Dr Katharine Phillips

The recent annual convention of American Psychiatrists in New Orleans saw interest raised into Olfactory Reference Syndrome, a disorder psychiatrists have come up with to explain people who come to them with body odor or halitosis concerns which they or anyone else associated with the person do not smell. Dr Katharine Phillips, a psychiatrist from the Butler Hospital in Rhode Island, hosted a press briefing on her findings of a small group of patients designated as fitting the ORS criteria.

Of course the big question is, do they really have an odor problem ? The pattern with systemic body odor or halitosis seems to be that most cases are transient and usually relatives or loved ones cannot smell them when they do smell to others. It would seem if a psychiatrist had a potential ORS case's well being as the main concern, it would be sensible to test all potential ORS cases for trimethylaminuria first. Even this is not satisfactory to declare it is in their mind, since it is very likely there are other systemic body odor or halitosis disorders caused by weaknesses in other bodily enzymes, but it is the only form of systemic body odor the medical system will currently accept. Dimethylglycinuria (DMGU) has already been proven as another systemic body odor although it is possibly very rare; however, it suggests that if they look hard enough they will likely find other metabolic weaknesses which will cause body odors. Only one case seems to have ever been documented for DMGU. Mild Isovaleric Acidemia is potentially a more common systemic body odor than DMGU. There's sure to be more, but TMAU does seem to have a chance of being the most common.

So the message to psychiatrist's is, at the very least, always test a potential ORS case for trimethylaminuria. You will likely be very surprised. As a society, the best and cheapest approach to body odor and halitosis would be a research center and clinic, which is something people could write to their politicians about.

Here is more media coverage of the ORS press briefing by Dr Katharine Phillips :

LA Times blog: People who are certain they stink, and the psychiatrists who sense this may be a disorder

ABC News: People Who Think They Stink May Have Mental Disorder 'Olfactory Reference Syndrome'

Medpage today: Body Odor Delusion May Spark Suicide Thoughts

WebMD: Many Delusional About Smelling Bad

Psych Central: Do You Think You Smell? Olfactory Reference Syndrome

María de la Torre
President and Chief Executive Officer

www.meboresearch.org
maria.delatorre@meboresearch.org



UPDATE, 07 JANUARY 2011: See post, 'Exciting changes in Mental Health Field re Olfactory Reference Syndrome' Our efforts bore great success for our community, and now we need to disperse this new information amongst all mental health therapists as we continue with our Raising Awareness Campaign.


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