Systemic body odor may be the last health problem to fully utilize the internet, due to the taboo of the subject, but slowly there are social network sites appearing to do with systemic body odors or halitosis. MeBO's facebook fan page aside, a quick search of TMAU on Facebook shows that 2 people have started a TMAU page. We do not know anything about the pages.
http://www.facebook.com/people/Tmau-Trimethylaminuria/100000899929844
http://www.facebook.com/people/Trimethylaminuria-Suffer/100000555220700
There is a more established page on this page, although again we cannot comment about it.
http://www.facebook.com/pages/TRIMETHYLAMINURIA-or-tmau-syndrome/372982954846
Whilst we wait for research into systemic body odor and halitosis, it is important to know you are not alone and that our problem is unacceptable and must be corrected. There are many others like us and the pattern from meetups is that usually no-one can smell each other. If anyone knows of any other similar Facebook pages, feel free to let us know.
Facebook page raising money for the TMAU NORD FUND set up by Kristen
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