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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, June 27, 2010

New York and New Jersey TMAU Meetup : 11 July 2010



DATE: July 11, 2010
TIME: 6:30pm
PLACE: Jacqueline Kennedy Onassis Reservoir 86th St. entrance
Everyone is invited to the TMAU meetup to be held in New York City Central Park in July. 'missfizi' extends her invitation below to everyone in the TMAU and Body Odor Community. If you would like to attend, please don't hesitate to email her to her email below. This invitation was taken from the Body Odor Support Forum with her consent:



HELLO, THE DATE FOR THE MEET UP IS JULY 11 IN NEW YORK CITY CENTRAL PARK BY the Jacqueline Kennedy Onassis Reservoir entrance on 86th street IN MANHATTAN THE TIME IS 6.30PM, IF YOU HAVE ANY FURTHER QUESTIONS, PLEASE LET ME KNOW. I HOPE YOU ARE INTERESTED, THESE MEETUPS ARE REALLY IMPORTANT YOU WOULD HAVE A CHANCE TO BE WITH PEOPLE WHO UNDERSTAND WHAT YOU ARE GOING THROUGH, WE COULD SHARE HELPFUL IDEAS AND TIPS, YOU COULD SEND ME AN MAIL ANYTIME IF YOU JUST WANT TO TALK.

missefizi@yahoo.com Jacqueline Kennedy Onassis Reservoir, Central Park

1 comments:

Anonymous said...

ola,ta dificil de ter um de vcs pra me comunicar,mas continuarei tentando

May 31, 2012, 6:00:00 PM
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