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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, July 2, 2010

Our TMAU Service Dog's Progress in videos

It is with great pleasure that I introduce our TMAU Service Dog, Dray in action performing scent alert work, with his volunteer handler, Charlotte, and his Master Trainer, Liz Norris. You are welcome to visit our new TMAU Service Dog Blog, in which we are documenting Dray’s progress, as well as any other future Service Dog we may acquire to help us in our efforts to identify and control the various body odor conditions. I hope you will enjoy the numerous videos Charlotte and Liz have taken for us so that we may witness Dray’s development. The Service Dog puppy, Vallie, who attended our Nashville meet-up in March 2010 is also in a few of these videos, as she’s being trained to be a Diabetic Alert Service Dog. When you visit this blog that has 36 posts, I recommend that you read at least the first 4 or 5 of them so that you can get a good feeling of the progress taking place.
...he may also help us discover odors that may not have yet been identified and classified as Dray follows the command to ‘find another’ of the same scent.
I’m happy to say that Dray has made great strides not only in alerting for various previously identified scents, but he may also help us discover odors that may not have yet been identified and classified as Dray follows the command to ‘find another’ of the same scent. Liz clearly explains in one of the videos how this can potentially help us isolate, study, identify and classify our various odor types with the help of a Service Dog to then better assist scientists design more on target research endeavors. Dray and other trained Service Dogs can also help a sufferer determine how much time he or she has between the dog’s detection/alerting and when humans begin to detect the odor. Keeping in mind that some humans will detect odor much sooner than other humans, while others may never detect it at all, it will be wonderful to be able to document this phenomena, probably for the first time ever. Thankfully, this will help sufferers learn to manage an odor flare-up with greater control, as this window of opportunity is better identified by an SD, helping us understand it, and to explore and develop management techniques in an effort to help the sufferer avoid embarrassing situations. María de la Torre, Director MEBO Research


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