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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Sunday, July 25, 2010

Dray's TMAU Class for Beginners (TMAU 101)

This is the beginning of Dray’s scent training for TMAU-specific work, using a cotton ball with a TMA-rich urine sample on it. Cotton holds and absorbs scent better than anything else. Up to now, Dray has been trained for other scents to develop the desired alert behavior; and now, it is geared to TMA specific training, and eventually, other body odor-related scents. The TMA sample was donated by a university lab that handles TMA-rich urine samples, and they asked MeBO to not disclose their identity as they wish to remain anonymous.

TMAU SALIVA and/or SWEAT SAMPLES NEEDED
From symptomatic volunteers who have
TESTED POSITIVE FOR TMAU

In order for Dray to have a well-rounded concept of TMA scent, Liz is asking for volunteers who have tested positive for TMAU and are certain that their saliva and/or sweat (collected in separate containers) would have TMA on it, by drenching a cotton swab with saliva or sweat and placing it in a zip lock bag and inserting it in a plastic container like the one Liz is working with in this video, covering it tightly with its proper seal. You can purchase these cheaply at your local grocery store. It would be greatly appreciated if you would then mail it to the following address:

Pawsibilities Unleashed
Pet Therapy of Kentucky, Inc.
P.O. Box 5316
Frankfort, KY 40602


We thank Liz and Charlotte for having spent countless hours, days, weeks and months in the development of this TMAU Service Dog Program. To think, WE'VE ONLY JUST BEGUN; THE SKY IS THE LIMIT!

Charlotte has not only adopted Dray, but has also spent a great deal of her time training him under Liz's direction, to be MeBO’s first TMAU Service Dog in an effort to help our community understand TMAU and other types of body odor conditions. Charlotte has frequently traveled a significant distance to Franfort, KY from her hometown for training lessons every week or every other week since our Nashville meetup in March 2010, incurring significant gas and hotel expenses, in addition to having committed to provide for Dray’s food and veterinary care for the rest of his life.

If anyone would like to donate to this cause to help Liz and Charlotte with the expenses they incur for our TMAU Service Dog Program, you may use the Donate button to do so. You support is greatly appreciated.




TMAU Service Dog




Liz is a former U.S. Air Force K-9 unit trainer, including search & rescue (SAR), cadaver detection, drug detection, and K-9 obedience. She has also trained Malamutes as sled dogs, shown on the AKC circuit, been an AKC judge, and has volunteered with her own dogs in multiple SAR missions...

Liz Norris is the founder of Pawsibilities Unleashed, a 501(c)3 non-profit organization. She is an official tester for the Therapy Dog certifications and Canine Good Citizen (CGC) tests and Service Dog Public Access Test.
http://puptky.giving.officelive.com/aboutus.aspx





María de la Torre
Director

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