The recent NORD newsletter has mentioned that Congress is setting up a Rare and Neglected Diseases Caucus, which will examine all aspects of how government can help rare and neglected diseases. NORD encourage those interested to contact their Representatives to ask them to join the caucus. Unfortunately TMAU may be possibly viewed as one of the least important rare/neglected disease, due to the lack of awareness and perception of the problem, so perhaps this could be one way of persuading politicians how it ruins lives.
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