Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, November 5, 2010

TMAU DNA testing now available from preventiongenetics.com



click to read
One of the goals of MeBO Research is to make trimethylaminuria testing more accessible worldwide and hopefully cheaper. Someday we would like to see TMAU testing being available from most local labs (hospitals or otherwise).

Recently, we wrote a number of private DNA test labs asking if they would consider making genetic TMAU DNA testing available, which means DNA testing for known sub-normal FMO3 copies.

We have just been informed that preventiongenetics.com will now offer the FMO3 DNA test (full sequencing) plus an interpretation report for $670 (please confirm when you book). A Doctor's request is necessary.

We are very grateful to preventiongenetics.com for adding the TMAU DNA test. Currently this means that HBRI is still the most reasonably priced in the USA for the TMAU DNA test at $400 (and Dr Cashman who runs HBRI is a renowned TMAU/FMO3 expert) and HBRI also allow the public to test direct without doctor's orders.

Nevertheless we are grateful that preventiongenetics.com has had the foresight to offer the DNA test, when most other labs do not.

MeBO Research will seek to make a TMAU DNA test available in the future whenever possible. We will offer the full sequencing form of testing, with low price and quality being the primary factors.

preventiongenetics TMAU DNA test requisition form
TMAU listed in list on preventiongenetics.com site

0 comments:

Post a Comment