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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, December 16, 2010

IRS has received MEBO Research's 501(c)3 Charity Application

I am happy to announce that according to the FedEx Tracking system, the U.S. Internal Revenue Service, E. O. Application Receiving Department has received MEBO Research’s 501(c)3 non-profit (Charity) application. This very long and involved application, IRS Form 1023, was done for MEBO on a pro-bono basis by The Legal Clinic of the College of Law of Florida International University This same Legal Clinic had also filled out the necessary documents to incorporate MEBO Research, Inc. in the State of Florida, on April 21, 2010 as a Not for Profit Organization. It is with profound gratitude that I thank this institution, my Alma Matter, for extending this pro-bono service to us.

According to, which explains how the IRS Processes Exemption Applications work, the final disposition of the applications received in the fiscal year 2007 were 79% Approvals, 2% Denials, and 19% Others. This article states,

(“Others” includes transfer to National Office, failure to provide additional information when requested, and status granted different from status applied for.)

If the IRS denies your application, they must provide you with a written explanation of the facts, law, and argument upon which their decision is based, as well as an explanation of your appeal rights.

In the very professional manner in which MEBO’s form was filled out by the Legal Clinic, I am very confident that we should not have any problems. My sincere gratitude goes to those persons who gave donations specifically for this purpose to raise the $750 fee required to register MEBO as a Charity in the United States.

The benefits of this status would be that it would put MEBO in a much better position to obtain grants and donations because they would be tax deductable to the donor, and to relieve MEBO from having to pay many taxes as well at the end of each fiscal year. Therefore, we expect a good return on our investment in the long-term.

Updates on this application process will be published on this site.

María de la Torre
President and Executive Director


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