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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Sunday, December 19, 2010

Trimethylaminuria case study in the Lancet

The British Medical Journal, The Lancet, this month includes a case study of a 45 year old man in Holland who has a severe body odor and was diagnosed with Trimethylaminuria (TMAU).

We do not have access to the full article but we are told he had a phenotype diagnosis with the urine test at the metabolic lab of the university of Neijmegen and Edit : It was originally thought the genetics were done in Heidelberg Germany, but a commenter has informed us it was in fact done : "by Prof Cornelis Jakobs PhD Metabolic Unit, Department of Clinical Chemistry, VU University Medical Centre, Amsterdam, The Netherlands".

In January, 2006, a 45-year-old man presented to our department; he complained of a strong objectionable body odour, resembling the aroma of fish, which had a profound influence on his life. He decided to seek help, because of marital problems related to his body odour. His wife noticed that the smell was present in his sweat, urine, semen, and saliva, and it got worse with consumption of certain food products. He had been offered a better job, but declined when he noticed that he had to sit in ...


Anonymous said...

The genetics weren't done in Heidelberg Germany, but in Amsterdam!
by Prof Cornelis Jakobs PhD Metabolic Unit, Department of Clinical Chemistry, VU University Medical Centre, Amsterdam, The Netherlands

Feb 16, 2011, 5:57:00 PM
blogcontributor2 said...

Thanks. Does the Amsterdam genetic lab see referred patients ?

Feb 18, 2011, 2:39:00 PM
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