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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Sunday, December 19, 2010

Trimethylaminuria case study in the Lancet

The British Medical Journal, The Lancet, this month includes a case study of a 45 year old man in Holland who has a severe body odor and was diagnosed with Trimethylaminuria (TMAU).

We do not have access to the full article but we are told he had a phenotype diagnosis with the urine test at the metabolic lab of the university of Neijmegen and Edit : It was originally thought the genetics were done in Heidelberg Germany, but a commenter has informed us it was in fact done : "by Prof Cornelis Jakobs PhD Metabolic Unit, Department of Clinical Chemistry, VU University Medical Centre, Amsterdam, The Netherlands".

In January, 2006, a 45-year-old man presented to our department; he complained of a strong objectionable body odour, resembling the aroma of fish, which had a profound influence on his life. He decided to seek help, because of marital problems related to his body odour. His wife noticed that the smell was present in his sweat, urine, semen, and saliva, and it got worse with consumption of certain food products. He had been offered a better job, but declined when he noticed that he had to sit in ...


2 comments:

Anonymous said...

The genetics weren't done in Heidelberg Germany, but in Amsterdam!
by Prof Cornelis Jakobs PhD Metabolic Unit, Department of Clinical Chemistry, VU University Medical Centre, Amsterdam, The Netherlands

Feb 16, 2011, 5:57:00 PM
MeBO Research Staff said...

Thanks. Does the Amsterdam genetic lab see referred patients ?

Feb 18, 2011, 2:39:00 PM
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