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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, December 14, 2010

Our Own Website to book Washington DC Embassy Suite Reservations

THE DULLES AIRPORT EMBASSY SUITES has created a webpage especially for MEBO Research's annual meetup to facilitate our reservations process! On this webpage you can see all the hotel and booking details, such as the special rates offered to MEBO members and guests for our meetup, the applicable Check-in dates, booking deadline, Tour Hotel, Maps, Directions, Amenities, and sites to visit in the area. Most importantly, making reservations for our group rate is only a click away.

This location was recommended by one of MEBO's Board Members, Glenna Gonzalez, Public Relations Director, and she was given a personal tour of the hotel. She was very impressed with it, and so now we have worked a great rate with the hotel Sales Department. We thank Glenna for her time and effort to get this great place for us to hold our meetup.

Room rates include :
  • Complimentary daily full breakfast per person
  • Complimentary daily 2-hour Manager's Reception, serving alcoholic and non-alcoholic beverages and snacks
  • Complimentary Dulles Airport shuttle
  • Free self-parking.

Even though the Terms and Conditions state, "Rates published are for single occupancy. An extra person charge per person may apply for 2 or more guests sharing the same guestroom," MEBO's group rate of $89/night are for single, double, triple, and quad occupancy, as stated in the contract I signed with the hotel:

Single Rate
Double Rate
Triple Rate
Quad Rate
Run of House

Please read the terms and conditions carefully for information on the multiple taxes imposed on this rate. You can guarantee your room at any time with a credit card, which will not be charged until checkout time after your stay. Inf you wish to cancel your reservation, you would need to do so 24 hours before arrival to avoid cancellation penalties. There is also a fee for early departure.

Embassy Suites Dulles Airport
13341 Woodland Park Drive
Herndon, Virginia 20171

María de la Torre
President and Executive Director

Related Posts:

Washington DC 2011: You can book MEBO’s 2nd Annual Meetup

Spring 2011 Meetup in Washington DC


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