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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, December 14, 2010

Our Own Website to book Washington DC Embassy Suite Reservations


THE DULLES AIRPORT EMBASSY SUITES has created a webpage especially for MEBO Research's annual meetup to facilitate our reservations process! On this webpage you can see all the hotel and booking details, such as the special rates offered to MEBO members and guests for our meetup, the applicable Check-in dates, booking deadline, Tour Hotel, Maps, Directions, Amenities, and sites to visit in the area. Most importantly, making reservations for our group rate is only a click away.

This location was recommended by one of MEBO's Board Members, Glenna Gonzalez, Public Relations Director, and she was given a personal tour of the hotel. She was very impressed with it, and so now we have worked a great rate with the hotel Sales Department. We thank Glenna for her time and effort to get this great place for us to hold our meetup.

Room rates include :
  • Complimentary daily full breakfast per person
  • Complimentary daily 2-hour Manager's Reception, serving alcoholic and non-alcoholic beverages and snacks
  • Complimentary Dulles Airport shuttle
  • Free self-parking.

Even though the Terms and Conditions state, "Rates published are for single occupancy. An extra person charge per person may apply for 2 or more guests sharing the same guestroom," MEBO's group rate of $89/night are for single, double, triple, and quad occupancy, as stated in the contract I signed with the hotel:

Room
Single Rate
Double Rate
Triple Rate
Quad Rate
Run of House
$89.00
$89.00
$89.00
$89.00

Please read the terms and conditions carefully for information on the multiple taxes imposed on this rate. You can guarantee your room at any time with a credit card, which will not be charged until checkout time after your stay. Inf you wish to cancel your reservation, you would need to do so 24 hours before arrival to avoid cancellation penalties. There is also a fee for early departure.

Embassy Suites Dulles Airport
13341 Woodland Park Drive
Herndon, Virginia 20171
1-703-464-0200


María de la Torre
President and Executive Director

maria.delatorre@meboresearch.org



Related Posts:

Washington DC 2011: You can book MEBO’s 2nd Annual Meetup

Spring 2011 Meetup in Washington DC

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