Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Scroll down and select country
MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, December 10, 2010

Video Testimonial of C

We have posted many videos in this blog, most involving sufferers who tell their story on television networks in the United States and United Kingdom. We have had numerous videos of Arun inviting us or telling us about the various meetups in the UK, and I’ve enjoyed myself creating videos of meetups in the UK and Nashville, TN, US that I’ve attended, as well as beautiful places I’ve visited. But I must say, some of my favorites are the “home made” videos done by sufferers in their own homes with their cam cameras sitting at their computers. Those are relatively unrehearsed or coached, and they come straight from the heart.

Here is a video of a beautiful young lady, Crystal Y from the Serendip Body Odor group, who just wants to ‘come out’ to us, and to tell us her story. Crystal told me that she would love for others to see her video and is honored to have the opportunity to inspire someone else. These are her words:

Hi María,

I appreciate the amazing feedback on my video! I absolutely do not mind if you post it,...In fact, I want others to see it. I'm honored to have the opportunity to inspire someone else; if I could inspire just one person in the smallest way, that would mean a great deal.

Thank you again and I look forward to connecting with your community as well.

Sincerely,

Crystal Y


I know everyone will enjoy the experience of meeting Crystal in this video. She says that would love to hear from us too, and she gives us her email address, sweetlady2222@hotmail.com in case anyone would like to write to her.


We have a page in MEBO’s blog called “COMMUNITY INVOLVEMENT,” and I invite everyone to browse through the "COMMUNITY FORUMS AND BLOGS" and to visit some of the various community forums and blogs it lists from around the world of the English speaking communities as well as the "DIVERSE LANGUAGES BODY ODOR FORUMS AND BLOGS". This page also has a section on "BOOKS WRITTEN BY SUFFERERS", including an anthology written by the former MSN Body Odor Support Forum that was closed and we migrated to the new Body Odor Support Forum bought for us by Arun Nagrath. This page also lists "INTERVIEWS WITH EXPERTS" that have so kindly given of their time to explain to us about body odor conditions and their recommendations.

The last but not least section of this page in our MEBO Blog invites sufferers to "MAKE YOUR OWN BODY ODOR/HALITOSIS VIDEO" as Crystal has done. We also have another sufferer who did a 3 Part video that we posted, “Filipino gentleman talks about his TMAU on CNN Ireport website”. We can all see how healing and inspiring their videos can be for many of us.

MEBO’s hope is to bring the whole international community together, to unite in sharing with each other so that we can support each other, and when research opportunities come along, there will be plenty of us to help the scientists help us on a voluntary basis only.

María de la Torre
President and Executive Director

maria.delatorre@meboresearch.org



0 comments:

Post a Comment