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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, February 1, 2011

NORD TMAU Fund : only $500 to go

NEWS: Thanks to Blue Sky Collector who just donated $100, the NORD fund now only needs $400 more to go! Thanks Blue!

Regular readers will know that the website has been raising awareness of the NORD TMAU Fund, which will send out requests for TMAU research proposals when it reaches a certain amount. Previously the fund would be triggered when it reached $35,000, but it has been recently changed to reaching $33,500. NORD give $30,000 to the research proposal that wins (the rest is NORD admin costs).

With the TMAU fund currently sitting at around $33,000, this means that only $500 is needed to trigger requests for research proposals into TMAU. The fund is of interest to experts because they can use it for preliminary research that may then have a better chance of qualifying for major grants. It also coincides with the yearly cycle of requesting for proposals, since they usually ask for requests in the springtime.

You can read more about the NORD Fund grant process here

And so, the community is just $500 worth of donations away from the first major TMAU research for a very long time. Anyone wishing to donate, it's best to check the rrr TMAU fundraising site to see how.


Blue_sky_collector said...

Make that only $400 to go after a few mins ago! Soooooo close! Amazing!

They do accept credit cards, if anyone is interested.

Feb 1, 2011, 9:26:00 PM
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