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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Tuesday, February 1, 2011

NORD TMAU Fund : only $500 to go

NEWS: Thanks to Blue Sky Collector who just donated $100, the NORD fund now only needs $400 more to go! Thanks Blue!

Regular readers will know that the rrr-tmau.org website has been raising awareness of the NORD TMAU Fund, which will send out requests for TMAU research proposals when it reaches a certain amount. Previously the fund would be triggered when it reached $35,000, but it has been recently changed to reaching $33,500. NORD give $30,000 to the research proposal that wins (the rest is NORD admin costs).

With the TMAU fund currently sitting at around $33,000, this means that only $500 is needed to trigger requests for research proposals into TMAU. The fund is of interest to experts because they can use it for preliminary research that may then have a better chance of qualifying for major grants. It also coincides with the yearly cycle of requesting for proposals, since they usually ask for requests in the springtime.

You can read more about the NORD Fund grant process here

And so, the community is just $500 worth of donations away from the first major TMAU research for a very long time. Anyone wishing to donate, it's best to check the rrr TMAU fundraising site to see how.

1 comments:

Blue_sky_collector said...

Make that only $400 to go after a few mins ago! Soooooo close! Amazing!

They do accept credit cards, if anyone is interested.

Feb 1, 2011, 9:26:00 PM
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