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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, March 3, 2011

The body odor and halitosis community goes to Washington : 8-10 April

With Spring in the air and Cherry tree blossoms throughout the National Mall in full bloom, thoughts turn to the 2nd annual USA body odor and halitosis meetup being held at Embassy Suites Dulles Airport, Washington starting on Friday night 8 April through to Sunday 10 April.

The first such USA meeting, arranged by MeBO Research President, Maria de la Torre, was held last year at Nashville Airport Embassy Suites, attracting 16 guests and deemed a huge success.

For those wishing to book a room, MeBO has arranged a deal with Embassy Suites that allows a discount rate for those who book using this webpage before March 18, to book for a day or 3. People are also welcome to just turn up for a while at the time, without booking. The consensus from last year is that those who only booked for a day wished they had stayed for both days.

This year at Washington, the interest has been phenomenal, with our poll suggesting 14 are already prepared to go, and another 39 are interested. 6 rooms have already been booked, and some are staying with family and friends in the city. This year the plan is to visit the National Mall area, with free tickets to a private White House Tour available. Please let us know if you are interested in going on the White House tour, since we are ordering the free tickets tomorrow. More details to follow about this.

Back at the hotel, everyone will feel relaxed in the open plan meeting area, and enjoy the company of others with the same condition. There will also likely be discussions about all aspects of body odor and halitosis including research. No photos or video of others is the general etiquette, with none allowed without the person's permission.

Anyone wishing to reserve a suite can do so through the MeBO page on the Embassy Suites site before March 18 (that's about 2 weeks from now). Or you can book later if you wish. The non-MeBO rates will charge an additional fee for more than one person, and the low rates non-MeBO rates would be instant purchase with penalties for cancellations. On the other hand, MeBO's rates do not charge per person, but rather per suite, and will not hold funds on your credit card account, and you can cancel up to 24 hours prior without a fee.

Come along and meet your brothers and sisters.

Posts about the 2010 Nashville body odor/halitosis meetup


photos from Nashville 2010


tmau testing usa
MEBO RESEARCH STAFF




Brief history of the Yoshino cherry trees in Washington:
After the wife of the Japanese Ambassador planted two Yoshino Cherry Tees in 1912 on the northern bank of the Tidal Basin, about 125 feet south of what is now Independence Avenue, many additional gifts were made throughout the years by other Japanese Amabassadors to the US; and in 1965,

The Japanese Government made another generous gift of 3,800 Yoshino trees to another first lady devoted to the beautification of Washington, Lady Bird Johnson, wife of President Lyndon Baines Johnson. American-grown this time, many of these are planted on the grounds of the Washington Monument. Lady Bird Johnson and Mrs. Ryuji Takeuchi, wife of Japan's Ambassador, reenacted the planting ceremony of 1912.

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