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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, March 28, 2011

Raising Awareness Campaign in UK General Medical Council and others, Part 2

PLEASE HELP!

SUFFERERS FROM ALL COUNTRIES
ARE INVITED TO PARTICIPATE IN SOLIDARITY
AS AN INTERNATIONAL COMMUNITY.

If anyone has not participated yet simply because you may not know what to write, where to begin your story, or because your story is simply too painful to put into words, I invite you to copy and paste the 3 paragraphs below, and email them to the links below. We already have a good Testimonials sent to these entities, and it is better that you send this information below than nothing at all. DON’T FORGET TO SIGN IT with your own name or a pseudonym (Please make it sound like a real name).

If it helps you feel more supported by identifying yourself (first name with the initial of your last name) as being part of an international movement, you can use the MEBO Research signature. It is OK to either do so, or to just sign it individually. Copy and paste it as you like.



RE: To Raise Awareness in the Medical Community of life-devastating body odour medical conditions; to pursue funds for research

To whom it may concern:

Would you please assist us in raising awareness in the medical community, so that when a physician sees a patient presenting with a body odour, he or she would have heard of Trimethylaminuria and be aware of systemic body odour conditions, and would know which tests to prescribe, and which experts to consult with for additional information?

Would you please assist us by referring us to individuals, private organizations, or government entities that we could turn to for research funding into Trimethylaminuria and any other body odour conditions?

Your kind assistance in this matter would be greatly appreciated.

Respectfully yours,

(Your name or pseudonym: a First Name and Initial of Last Name)
MEBO Research Group
www.meboresearch.org
0800 0588015UK
(786)228-6880USA


LINKS TO WHERE YOU CAN EMAIL THIS MESSAGE:

Linda.Willmott@headoffice.mrc.ac.uk

education@gmc-uk.org
publications@gmc-uk.org
gmc@gmc-uk.org
gmctoday@gmc-uk.org

bma-library@bma.org.uk

education-courses@rcplondon.ac.uk

thismorning@itv.com



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A EURORDIS and NORD Member Organization 

1 comments:

Anonymous said...

Post this on rare connect to get more people's attention.

Nov 8, 2016, 8:12:00 AM
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