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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, April 19, 2011

How to use this blog "for beginners" Part 2


Back in October 19, 2008, when the blog only had 300 posts, I published a post in this blog entitled, “How to use this blog : for beginners.” Now the blog has 864 posts, and we have grown so much as a community who has sought for and acquired so much more information, and who has been richly blessed with the support and guidance of so many experts. So now, we have so much more new information to offer, that I struggle to find a way to introduce all this information to a newcomer. Where do we begin?

Well we can still refer to the great introductory references noted in the previous post, such as,

Aruns overview on body odor and halitosis (Note: the MSN body odor support group has now moved to a new forum obtained for us by Arun, ). We can also refer to MEBO Research’s website in which discussion on the different body odor conditions are addressed in the Body Odor section and the Trimethylaminuria (TMAU) section where we feature a PowerPoint presentation given to MEBO Research by the renown Dr. Elizabeth Shephard on FMO3 enzyme and TMAU for viewing in the conference part of our Washington DC Meetup 2011. This site also has a Other Systemic Body Odor Conditions section that you might also find interesting.

Going back to this blog, you can browse through the Interviews with Experts section (scroll down to see all posts), in which experts have kindly given us answers to many of our questions. Some interviews are easier to understand than others, but it time, things will begin to make more sense, and you will begin to understand your odor condition better. It is in understanding our respective body odor condition that leads us to determining what odor-management protocol to follow to reduce our body odor.

Equally as important to determining the degree of odor, we also do need to become informed on the sensitivity, or lack of sensitivity of the human olfactory system. The post, “Do they smell me or not?” attempts to address this question.

This leads us to some suggestions on some blog posts on TMAU odor-management protocols recommended by the US National Institutes of Health (NIH), and its variations adapted by different cultures. The value of probiotics and prebiotics is also stressed to help with gut flora imbalances (gut dysbiosis), which may have odor-producing microorganisms overpopulating in our gut, irritating the semipermeable wall, thus allowing larger molecules to filter through to the bloodstream, that perhaps should not do so under normal condition. Also, there are TMA and hydrogen sulfide odor-producing bacteria in the gut, vagina, and dorsal tongue that have been treated with probiotics (in some cases successfully).

You will find that there are many posts written on bromhidrosis, hyperhidrosis, halitosis, and foot odor.

A whole page is dedicated to the International TMAU Testing Labs from around the globe, and to the various groups that comprise our International Community Involvement. As an organized international community, we have written an Anthology of testimonials expressed in poetry, essays and short stories. We also carry out our Raising Awareness Campaign in the medical and mental health community, as well as in society at large in multiple countries.

We strive to unite in this blog and in Arun’s Body Odor Support Forum, as well as all the other sites mentioned on this page, to organize our meetups in various countries of the world where sufferers come together to enjoy beautiful surroundings and have the opportunity to share and bond with other sufferers who share the same experiences as well as to learn from each other and from the experts who guide us. You can look at the “Search posts through Labels” for the ‘meetup’ keyword to learn about these.

You might also enjoy watching the 32 different videos we have in various posts in this blog.

This would only be scratching the surface of a well-rounded coverage of body odor conditions and the body odor community, and testing sites, and I hope you find this information interesting and useful in learning management techniques regarding your own body odor condition.

María


María de la Torre
President and Executive Director

A Public Charity

www.meboresearch.org

maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)

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