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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, May 21, 2011

Body Odor person's story to appear in popular UK newspaper 'The Sun' next week

A brave member of the body odor community will appear in the best-selling national newspaper in the UK; The Sun either next Tuesday or Wednesday. This will be a result of the agencies who were recently looking for TMAU stories to sell to the media. This is another major public appearance for a body odor story, greatly raising awareness further. We are all indebted to these brave pioneers. They follow brave media heroes of the past, some examples from our hall of heroes are given below :

Hall of Heroes :

Camille's TMAU story on ABC News Primetime in 2006
Cheryl appearing on popular medical show 'Mystery Diagnosis' in 2009
Tammy who appeared on a popular mid-morning USA TV show in 2007; and along with Cheryl Fields and others appeared on a 10news story about TMAU in 2008, and also on a Komo News TV story in 2007 (shown above)
Gary's TMAU story on the BBC 'One Show' ; a primetime BBC evening show in 2010, as well as local BBC radio and the Yorkshire Post
Claire talk of her TMAU on 'This Morning', the most popular mid-morning chat show on UK TV in 2010
Michelle's TMAU story on 'Embarrassing Bodies' ; a popular medical UK TV show in 2010
The 3 volunteers that were on 'Help I smell of Fish' BBC documentary on UK TV in 2007
Arun Nagrath, who appeared on a discussion about body odor and halitosis on BBC Radio World Service in 2006

All have bravely helped us get closer to treatment and cures for the taboo subject of systemic body odor and halitosis, as well as other forms of BO/halitosis. Thank you


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