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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, June 2, 2011

MEBO Research’s commitment to transparency Part 2

As noted in the Part 1 post in this blog dated May 16, 2011, I have been working on MEBO’s annual returns in the US and the UK, and have finally achieved this task to its completion.


All are invited to see MEBO Research's detailed financial reports,
since the inception of the US company,
MEBO’s US Charity bank and PayPal accounts
,
and MEBO’s UK PayPal Report of this past fiscal year.

As you will note on these reports, MEBO has never been in the red in any of these accounts; and even though the income has been very limited, each dollar/pound has been carefully managed and guarded.

Due to my recent personal hospitalization and persistently not feeling well, I have had to struggled to muster up energy to be actively involved in our multiple community projects, such as,
  1. To post in the Body Odor Support forum,
  2. To attempt to answer some of the emails I receive (can’t get to them all),
  3. To attempt answer some of the phone calls I receive from the community (can’t seem to get to them all),
  4. To stay involved in the projects members from the MEBO community are carrying out to promote raising awareness and public relations in a few countries, and with the creation of a new petition for our international community to utilize to support this effort,
  5. Working diligently to face the challenges involved in expanding TMAU testing to all sufferers throughout world with all the complications international programs inherently brings,
  6. To assist MEBO volunteers in posting and maintaining MEBO’s Blogs and Website,
  7. And what is most exciting to me, to finally begin work with a very coherent team of MEBO volunteers as we have initiated MEBO’s fundraising/grant seeking campaign targeting private and public corporations and government agencies at an international level. Much more information will soon be forthcoming about this campaign in this blog and in MEBO’s website.

IT MUST BE NOTED THAT since the first post written on this blog on October 4, 2008, followed by all the programs MEBO has supported and spearheaded to the present time, not one person or private organization has ever been paid one single U.S. cent/UK pence/European Euro, for any MEBO related services.
This includes all sufferers or non-sufferers in our community who have participated in any of MEBO’s projects, including but not limited to,
  1. Participants of the raising awareness campaign,
  2. Participants of the self-funded small study projects/testing programs with Biolab Medical Unit, SmartNutrition, and Eliapharma Services Inc., (paid by each individual person testing, and these labs/experts are not part of MEBO in any way,
  3. The attorney and law students at Florida International University College of Law, who volunteered their services pro-bono to raise MEBO to a 501(c)(3) Public Charity Status in the US,
  4. MEBO’s accountant in England,
  5. MEBO’s financial advisor in the US,
  6. MEBO’s technical consultant in the US,
  7. MEBO’s Board Members, including myself.
  8. Experts from multiple countries who have participated in providing MEBO with quality scientific information to publish in our English and Spanish blogs and website and to discuss in the conference part of our U.S. annual meetup, and many more projects.

I reiterate, I AM PROUD TO SAY THAT NOT ONE PERSON HAS RECEIVED MONETARY COMPENSATION OR ANY OTHER COMPENSATION FOR THEIR VOLUNTEER WORK. It is humbling to see the inspiration and determination of our vast international community to become proactive in pursuing testing, funding for serious research into all body odor conditions, and in changing the world in which we live to provide for ourselves equal opportunity to live our lives in pursuit of happiness. It is the palpable commitment to action of our international community that inspires me and gives me the strength to continue moving forward in assisting the volunteers achieve our goals, even when my body fails me over and over again.

I warmly thank each and every one of you for being a part of this community.

María


María de la Torre
President and Chief Executive Officer

A Public Charity

www.meboresearch.org

maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)

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