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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, June 25, 2011

The moment of truth is now - PETITION

Every once in a while, we are faced with a moment of truth, a moment in which we can be valiant and stand up and make a difference, and that moment is now.
Why is it so difficult for the body malodor and halitosis community to be acknowledged as an entity that needs attention by the scientific/medical community and society at large in order to obtain the help needed? What puts our community in last place in any attention-getting efforts compare to other “popular” diseases?

The nature of this condition drives the sufferer to feel embarrassment at all times, in all social situation, thus driving the individual towards social isolation. Many persons fight through this obstacle and manage to find employment and to create a family with a life partner and have children, yet there is always an omnipresent underlying anxiety of living with this embarrassment and shame.

This way, we can overcome the frequent objection to funding research which claims that we are small in numbers and not worth the investment.
So for a sufferer to be asked to participate in a raising awareness project to promote research, treatment, and a cure, is a very threatening prospect because it basically calls for the individual to come out of his or her safety zone and to come out of “hiding.” Nevertheless, it is the ONLY way that research, treatment, and a cure can be obtained! This way, we can overcome the frequent objection to funding research which claims that we are small in numbers and not worth the investment.

This is the time to make a decision to be strong, to stand up and take action, to make a difference, and to make it better!
Throughout our lives we are faced with many challenges that we would prefer never existed, and this one is near the top of the list. In the end, like every other aspect of our lives, we will be held accountable for our actions, if to no one else, to ourselves and even more painfully, to our offspring. Every once in a while, we are faced with a moment of truth, a moment in which we can be valiant and stand up and make a difference, and that moment is now. This is the time to make a decision to be strong, to stand up and take action, to make a difference, and to make it better!


PLEASE SIGN THE PETITION TO,

  • raise awareness of systemic body odor conditions in the medical community
  • governments to increase direct federal funding
  • make scientific research of various types of body odor diseases a high-priority; including but not limited to, Trimethylamimuria (TMAU)
  • efforts so that effective treatments and cures can be found.

PLEASE ASK YOUR FAMILY, FRIENDS, AND SUPPORTERS TO SIGN.
Anyone can select to either display or not display
his or her signature publicly on the petition.


Thank you for your participation in finding a solution,

María


María de la Torre
Founder and Executive Director

A Public Charity

www.meboresearch.org

maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)

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