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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, September 17, 2011

The 2 ladies in recent UK magazine articles about Trimethylaminuria

TMAU story in Chat Magazine
Thanks to the bravery of 2 English ladies last week, TMAU has got more media coverage that breaks down the taboo about the subject of metabolic body odors and/or halitosis. Karen, who is a now well-known pioneer for raising awareness of and campaigning for research into metabolic odors and has recently appeared on TV, now follows up that appearance with an article in the popular weekly UK 'Chat Magazine'. Thanks again Karen.

TMAU story in 'That's Life'
In the 2nd article, a brave lady tells her story to the popular weekly UK magazine "That's Life". We thank her for her courage. The 2 images are scanned copies of the articles and can be read, which we hope the ladies involved do not mind us posting. We also waited until the magazine copies were no longer available, so that any journailsts reading can see that sales will not be affected and probably increased due to the publicity here.

TMAU article in Chat : magnify-able
TMAU article in 'That's Life' : magnify-able

Note : A lot of these articles offer volunteers money (not much) for their stories, which is quite right. If anyone wishes to tell their story they are entitled to ask if they will receive a payment. They deserve it.

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