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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, September 17, 2011

The 2 ladies in recent UK magazine articles about Trimethylaminuria

TMAU story in Chat Magazine
Thanks to the bravery of 2 English ladies last week, TMAU has got more media coverage that breaks down the taboo about the subject of metabolic body odors and/or halitosis. Karen, who is a now well-known pioneer for raising awareness of and campaigning for research into metabolic odors and has recently appeared on TV, now follows up that appearance with an article in the popular weekly UK 'Chat Magazine'. Thanks again Karen.

TMAU story in 'That's Life'
In the 2nd article, a brave lady tells her story to the popular weekly UK magazine "That's Life". We thank her for her courage. The 2 images are scanned copies of the articles and can be read, which we hope the ladies involved do not mind us posting. We also waited until the magazine copies were no longer available, so that any journailsts reading can see that sales will not be affected and probably increased due to the publicity here.

TMAU article in Chat : magnify-able
TMAU article in 'That's Life' : magnify-able

Note : A lot of these articles offer volunteers money (not much) for their stories, which is quite right. If anyone wishes to tell their story they are entitled to ask if they will receive a payment. They deserve it.


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