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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, September 19, 2011


Benefits of the MeBO TMAU Urine Test Program

A note from MEBO Research's Managing Director

If you subscribe to the blog or have visited the site you understand that systemic body odor is a devastating disease that can strike anyone. As you have come to realize there is little to no research regarding the pathobiology of body odor disorders, effective treatments, or even cures. We are grasping even at a diagnosis so that we can try to understand and treat our specific conditions. So you may be asking yourself why should I spend money to test for TMAU?

It’s the process of elimination that will increase your chances of answering questions related to your body odor condition.
We’ll the answer is simple, you have to eliminate possible causes of body odor or halitosis with known testing. Currently, you can screen for TMAU by measuring the ratio of trimethylamine to trimethylamine oxide. This will give you an idea of how well your body breaks down trimethylamine from compounds in food digestion into TMAO, a non-odorous state. A TMAU test will identify the production level of your FM03 and will suggest any deficiencies. It’s the process of elimination that will increase your chances of answering questions related to your body odor condition.

Many general practitioners are unaware of TMAU or consider TMAU a very rare disorder. Unfortunately, it unknown how many people truly suffer from TMAU because testing is limited or sufferers are not sure whether to test or not because they do not smell like fish. As noted by MEBO and by Karen James, who spearheaded the raising awareness campaign in the UK, TMAU produces many other odor types.

To those that have already tested, we strongly encourage you to voluntarily submit your results to the MEBO database online.
We encourage everyone that suffers from body odor symptoms including individuals that feel they have a high toxin load to test for TMAU. We at MEBO are fortunate to have a heavily discounted TMAU testing program available. Results will be given for primary and secondary TMAU.

To those that have already tested, we strongly encourage you to voluntarily submit your results to the MEBO database online. This can be found in the blog. A compilation of the community’s results, without any personal information, will allow the community and researchers to have insight into other results so that advances can be made. It will also give each person the tools needed to investigate trends, contribute ideas into a collective process that allows progression, and insight into body odor causes.

With our investigative know-how, we can contribute as a community to find a treatment or a cure.

body odor petition
MEBO Research


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