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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, December 15, 2011

The Big Skype body odor & halitosis audio chat this Saturday 1pm Pacific Standard Time

Skype bb & bo group chat
contact username : skunkhugs j support chat
1pm PST this Saturday
download free skype program (choose free option)
Sign up to skype (free)

This Saturday sees the inaugural use of skype to enable the worldwide body odor and halitosis community to communicate free to a good quality audio group chat. The project is the work of skype username 'skunkhugs j', who will place you in the group chat if you contact him via skype messenger.

For those who have not downloaded skype or do not know much about it, it's pretty easy to get used to. If you are worried about being on camera, you can turn your camera to face a wall (people usually appear on camera for 30 seconds in groups to tempt you to buy group video, then it's audio only). You can also just listen (set your mic to mute) and even just type messages. All are strongly encouraged to participate either talking or writing in chat during the call. Ideally, we strive for all callers to eventually talk on calls as time passes. This could be a healing process for anyone who has developed social anxiety.

The chat will be general, but to get things going some provisional topics suggested are :

message from 'skunkhugs j'
Hello bb & bo group . Skype conferences will begin next Saturday at 1pm Pacific Standard Time .
Some topics will be : Sharing coping techniques , low choline recipes , your input on a members map , what to do if Doc's and others deny odor ... and many other subjects to be discussed

If Skunkhugs has any new messages we will post them here.

So come along and join the inaugural skype body odor and halitosis group chat, which hopefully will become a permanent fixture.

To work out what time 1pm PST is your time, you can use this link
24 hour timezone map for the skype body odor & halitosis chat

halitosis research
body odor petition
MEBO Research


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