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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, December 15, 2011

The Big Skype body odor & halitosis audio chat this Saturday 1pm Pacific Standard Time

Skype bb & bo group chat
contact username : skunkhugs j
mebopetition.org support chat
1pm PST this Saturday
download free skype program (choose free option)
Sign up to skype (free)

This Saturday sees the inaugural use of skype to enable the worldwide body odor and halitosis community to communicate free to a good quality audio group chat. The project is the work of skype username 'skunkhugs j', who will place you in the group chat if you contact him via skype messenger.

For those who have not downloaded skype or do not know much about it, it's pretty easy to get used to. If you are worried about being on camera, you can turn your camera to face a wall (people usually appear on camera for 30 seconds in groups to tempt you to buy group video, then it's audio only). You can also just listen (set your mic to mute) and even just type messages. All are strongly encouraged to participate either talking or writing in chat during the call. Ideally, we strive for all callers to eventually talk on calls as time passes. This could be a healing process for anyone who has developed social anxiety.

The chat will be general, but to get things going some provisional topics suggested are :


message from 'skunkhugs j'
Hello bb & bo group . Skype conferences will begin next Saturday at 1pm Pacific Standard Time .
Some topics will be : Sharing coping techniques , low choline recipes , your input on a members map , what to do if Doc's and others deny odor ... and many other subjects to be discussed

If Skunkhugs has any new messages we will post them here.

So come along and join the inaugural skype body odor and halitosis group chat, which hopefully will become a permanent fixture.

To work out what time 1pm PST is your time, you can use this link
24 hour timezone map for the skype body odor & halitosis chat

halitosis research
body odor petition
MEBO Research

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