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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, December 10, 2011

Poll : TMAU therapeutic protocol, do you think it helps ?

TMAU : Do you think the TMAU therapy protocol works ?

There does not seem to have been any collective study to find out if those who have been 'diagnosed' with trimethylaminuria (TMAU) have had success with the therapeutic protocol designed for the 'disorder' (mainly low-choline low-carnitine low-TMAO  no-cruciferous veg diet, charcoal and/or chlorophyll, low PH soaps, sometimes antibiotics, and probiotics). This is a 'snapshop' poll to see if any trend is apparent. One of the ironic things about TMAU is that normally the person nor 'loved ones' can smell the person, so monitoring is very difficult anyhow. Nothing definite can be deduced from the poll. An option is added for 'Non-TMAU' cases since many not diagnosed with TMAU often try the TMAU therapy protocol.

TMAU1 means 'genetic TMAU' (i.e. FMO3 deficiency)
TMAU2 means 'secondary TMAU' (i.e. normal FMO3 function but trimethylamine overload)

Anyone who has had TMAU1 and 2 suggested in different urine test results can consider themselves TMAU1 for the poll.

body odor petition
MEBO Research


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