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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, December 10, 2011

Poll : TMAU therapeutic protocol, do you think it helps ?

TMAU : Do you think the TMAU therapy protocol works ?

There does not seem to have been any collective study to find out if those who have been 'diagnosed' with trimethylaminuria (TMAU) have had success with the therapeutic protocol designed for the 'disorder' (mainly low-choline low-carnitine low-TMAO  no-cruciferous veg diet, charcoal and/or chlorophyll, low PH soaps, sometimes antibiotics, and probiotics). This is a 'snapshop' poll to see if any trend is apparent. One of the ironic things about TMAU is that normally the person nor 'loved ones' can smell the person, so monitoring is very difficult anyhow. Nothing definite can be deduced from the poll. An option is added for 'Non-TMAU' cases since many not diagnosed with TMAU often try the TMAU therapy protocol.

TMAU1 means 'genetic TMAU' (i.e. FMO3 deficiency)
TMAU2 means 'secondary TMAU' (i.e. normal FMO3 function but trimethylamine overload)

Anyone who has had TMAU1 and 2 suggested in different urine test results can consider themselves TMAU1 for the poll.

body odor petition
MEBO Research


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