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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, December 10, 2011

Poll : TMAU therapeutic protocol, do you think it helps ?

TMAU : Do you think the TMAU therapy protocol works ?

There does not seem to have been any collective study to find out if those who have been 'diagnosed' with trimethylaminuria (TMAU) have had success with the therapeutic protocol designed for the 'disorder' (mainly low-choline low-carnitine low-TMAO  no-cruciferous veg diet, charcoal and/or chlorophyll, low PH soaps, sometimes antibiotics, and probiotics). This is a 'snapshop' poll to see if any trend is apparent. One of the ironic things about TMAU is that normally the person nor 'loved ones' can smell the person, so monitoring is very difficult anyhow. Nothing definite can be deduced from the poll. An option is added for 'Non-TMAU' cases since many not diagnosed with TMAU often try the TMAU therapy protocol.

TMAU1 means 'genetic TMAU' (i.e. FMO3 deficiency)
TMAU2 means 'secondary TMAU' (i.e. normal FMO3 function but trimethylamine overload)

Anyone who has had TMAU1 and 2 suggested in different urine test results can consider themselves TMAU1 for the poll.


body odor petition
MEBO Research

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