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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, December 13, 2011

Egg white protein powder as a source of protein on the TMAU 'low choline' diet

Egg White powder has almost no choline

Those who feel that trimethylaminuria is their only problem and fully explains their metabolic body odor condition are very likely to try the 'low choline' diet as the main part of their 'trimethylamine control' program. Probably the major problem with this diet is finding a source of protein, since most sources (soya, meat, eggs, legumes etc) seem to have a lot or quite a lot of choline content. Most people following the diet are aware that whole eggs are one of the richest sources of choline in the diet, however it is the yolk that is rich in choline (680mg/100g). The egg white has almost none ( as it happens, pure egg white protein powder is also one type of protein that body builders may choose as a source of extra protein for themselves, so egg white protein powder is quite readily available.

As MEBO gets commission through purchases bought through it's links at no conditional cost to you, we searched Amazon for the best price for a decent sized container of pure egg white protein powder. So far this looks to be the best value we can find for USA. If anyone sees a better value tub on Amazon they can inform us if they wish. Let us know what you think.

So, for those wishing to make sure they get enough protein on a strict 'low choline' diet, you are welcome to purchase this or any other brand on Amazon through our link at no additional cost. As long as you go through any of our Amazon links to buy anything, MEBO will get commission.

Note about 'low choline diet' : It has been demonstrated that mice fed a low choline diet developed 'reversible fatty liver' and this is thought to be the same possible outcome for humans, therefore a 'no choline' diet has it's risks. For those who feel TMAU is their only problem, It's probably best to try for a diet that is 'low choline' rather than none.
Pubmed abstract on low choline and fatty liver

For your information,
Suggested RDA for choline in humans is currently
Adult Male : 550mg
Adult female : 420mg

It is also suggested that those on the low choline diet take extra folic acid (folate) to replace the choline's role as a 'methyl donor' as much as possible.


Anonymous said...

Dec 13, 2011, 6:23:00 AM
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