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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

TMAU Movie


THE BOY WHO
SMELLS LIKE FISH

Movie also called,
TREADING WATER
See trailer'
Winner of Golden Trailer Award 2013

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, January 16, 2012

Presenting MEBO UK’s new Community Outreach Director – Stephanie Hinsley

It is with great pleasure that I announce Stephanie Hinsley’s acceptance of the position of Community Outreach Director of our not-for-profit Limited by Guarantee Company, MEBO Research (MEBO UK). Stephanie has posted in various forums with username, “Kitty” for a few years now.

Stephanie brings to the table a new approach in our Raising Awareness Campaign with a focus on,

"PARENTING"

What a great idea! Education begins in the home, and kids can learn about body odor conditions and how to treat a person with body odor and halitosis conditions in a sensitive manner. With this goals in mind, we also help parents learn about the conditions and understand the sensitivities involved. Excellent approach, Steph, thanks!

Using her own words, Steph has already "dashed off an introductory email to

Firstly, I'd like to compliment you on the excellence of the Mumsnet site...
Now, as briefly as possible....I wonder if Mumsnet would help us with our cause...

We are a community of metabolic breath and body sufferers from various internet forums, and a charity, MEBO Research USA...We have now formed a UK branch and our Executive Director is Karen James, who as a teacher, has suffered discrimination in the work place. And as a mother has anxieties about a new generation of Trimethylaminuria Syndrome, which can be passed on. She bravely appeared on ITV's This Morning, which can be viewed on YouTube...............

Our goals are......

Education....(even many GP's are unaware, and diagnosis can be mental disorder, OCD and so) Overuse of antibiotics in childhood, and regulation and prescription of probiotics after antibiotics...

Bullying and discrimination (sadly even from school staff, and pupils)

Please help us in any way you can.

Warm regards,

Stephanie Hinsley (MEBO Community Outreach Director)

I know everyone in our community will welcome Stephanie with open arms and support her in her raising awareness campaign and in reaching out to the community to provide the much needed support all sufferers need to pursue a better life for ourselves and our offspring. If anyone would like to support her in this venture, please feel free to contact her at stephanie.hinsley@meboresearch.org.

Thank you Stephanie for your commitment to be proactive in MEBO Research’s programs. Welcome to our team!

María



Here's MEBO's Kitty for "Kitty"



halitosis research
María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition

body odor petition
MEBO Research

posted by Maria de la Torre on 1/16/2012
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