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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, January 16, 2012

Presenting MEBO UK’s new Community Outreach Director – Stephanie Hinsley

It is with great pleasure that I announce Stephanie Hinsley’s acceptance of the position of Community Outreach Director of our not-for-profit Limited by Guarantee Company, MEBO Research (MEBO UK). Stephanie has posted in various forums with username, “Kitty” for a few years now.

Stephanie brings to the table a new approach in our Raising Awareness Campaign with a focus on,


What a great idea! Education begins in the home, and kids can learn about body odor conditions and how to treat a person with body odor and halitosis conditions in a sensitive manner. With this goals in mind, we also help parents learn about the conditions and understand the sensitivities involved. Excellent approach, Steph, thanks!

Using her own words, Steph has already "dashed off an introductory email to

Firstly, I'd like to compliment you on the excellence of the Mumsnet site...
Now, as briefly as possible....I wonder if Mumsnet would help us with our cause...

We are a community of metabolic breath and body sufferers from various internet forums, and a charity, MEBO Research USA...We have now formed a UK branch and our Executive Director is Karen James, who as a teacher, has suffered discrimination in the work place. And as a mother has anxieties about a new generation of Trimethylaminuria Syndrome, which can be passed on. She bravely appeared on ITV's This Morning, which can be viewed on YouTube...............

Our goals are......

Education....(even many GP's are unaware, and diagnosis can be mental disorder, OCD and so) Overuse of antibiotics in childhood, and regulation and prescription of probiotics after antibiotics...

Bullying and discrimination (sadly even from school staff, and pupils)

Please help us in any way you can.

Warm regards,

Stephanie Hinsley (MEBO Community Outreach Director)

I know everyone in our community will welcome Stephanie with open arms and support her in her raising awareness campaign and in reaching out to the community to provide the much needed support all sufferers need to pursue a better life for ourselves and our offspring. If anyone would like to support her in this venture, please feel free to contact her at

Thank you Stephanie for your commitment to be proactive in MEBO Research’s programs. Welcome to our team!


Here's MEBO's Kitty for "Kitty"

halitosis research
María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition

body odor petition
MEBO Research


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