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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, January 10, 2012

Systemic odor: one step at a time






As we have read updates in this blog from MEBO's Scientific Director, Dr. Irene Gabashvili regarding the “connecting the dots” process of Aurametrics, we see that some early results on fatty and ammonia types of odors identified a few food ingredients and their maldigestion as potential causes. Irene gives us more data obtained from a survey of approximately 100 body odor and halitosis sufferers indicating triggers of odor.

Aurametrix can be most helpful for persons who are trying to fine-tune their diet after having somewhat controlled their odor condition with it, but who need to increase the choline, protein, whole grains, and other nutrients intake level, while exercising to cleanse out excess unmetabolized VOCs.
Some sufferers have told me that they hesitate to write their diets because they are cheating and not really sticking to their diet goals. Well, in fact, this would be a very good scenario from which to document exactly what foods you consider to be “cheating foods,” and what symptoms you experience the following 2 days – not only odor related, but mood, sleep patterns, energy levels, etc. This will give you feedback on whether these are indeed foods you should be staying away from.

After this analysis, you can repeat your participation in the program for another few days when you are “being good” on the diet that you think best controls your symptoms.

If you have no idea which diet would truly control your symptoms, this program is most certainly a starting point that will guide you toward empowering awareness.

In addition, Aurametrix can be most helpful for persons who are trying to fine-tune their diet after having somewhat controlled their odor condition with it, but who need to increase the choline, protein, whole grains, and other nutrients intake level, while exercising to cleanse out excess unmetabolized VOCs. With Aurametrix, you can document the quantity of these foods that you are taking and the amount of exercise you are doing to see the patterns in your symptoms. Frequently, sufferers are surprised at how they can eat healthier foods when doing cardiovascular workouts on a regular basis.


Irene has designed a survey to help sufferers jumpstart their private personal profile, or to better align their current one, in hope that it will lead sufferers to regain more control over their lives through awareness by “connecting the dots.” I encourage everyone to participate.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
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A EURORDIS and NORD Member Organization

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