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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, February 23, 2012

MeBO-Biolab gut dysbiosis study : Results for volunteer 13

Project : MEBO gut dysbiosis study using selected tests from Biolab UK within a budget

Below is the results for Tester 13 in our first testing project, the gut dysbiosis study using tests offered by Biolab Clinical laboratory in London. The tests were limited to keep the costs within a certain budget, since each volunteer was paying their own costs.

Tester 13
Male, late 20's
Odor problem:
body odor for 5 years, a range of odors including fecal, gas. Believes it systemic
Gut problems
Undigested food in stools. Crave simple carbs
Other problems
Maybe fatigue
Not tested

Results :
Tester 13
Gut Fermentation
Normal profile

Gut permeability
Normal profile


Comment by the study overseer, MEBO Director Professor Irene Gabashvili

Young male suffering from body odor for 5 years, a range of odors including fecal.
Main findings are positive Indicans (as in 40% of sufferers), along with decreased short chain fatty acids (SCFA, decreased in 50% of sufferers) and slightly elevated 2-propanol (as in 30% of sufferers).
Results are most similar to Tester 2 although not as dramatic, also similar to Tester 6.
Tester 2 was also suffering from many odors, combinations of sulfur and ammonia, while Tester 6 complained about ammonia odor. Intestinal permeability is normal, lower than in all other testers with body odor and is resembling profiles of those complaining about halitosis.

Results consistent with bacterial overgrowth and possibly excess carbohydrate reaching the colon. Malabsorption of protein, low levels of hydrochloric acid or pancreatic insufficiency may be also possible.

body odor petition
MEBO Research


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