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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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or contact
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, February 24, 2012

MEBO's table exhibit at Rare Disease Day at NIH

We are most grateful to Cheryl Fields for her very hard work in contacting many resources in preparation for the Rare Disease Day events that are to be held in Washington DC on February 29th (in only 5 days). Cheryl will be setting up and operating a table for MEBO Research in this event, and is hoping many people in our community go visit her there.

Cheryl received the email instructions below from the Senior Health Scientist Administrator of the Office of Rare Diseases Research, National Center for Advancing Translational Sciences (NCATS), NIH , for table exhibitors at Rare Disease Day at NIH. For those attending, here is a copy of this email so that you will know where Cheryl will be:


When you arrive at the NIH Clinical Center please look for the Office of Rare Diseases Research table. We will have a listing of the table assignments. The tables will be arranged in the South Lobby of the Clinical Center (Building 10). The NIH Campus Shuttle has a stop on the south side of the building. If you arrive at the North Lobby, there will be directional signs directing you to Masur Auditorium. The South Lobby is around the corner and down the hall from Masur. The tables will be ready for you by 7:30 am. Please allow sufficient time in the Visitors Gateway Center to go through security. The tables will be approximately 3’ x 6’ and there will be two chairs with each table. The exhibits should stay up, when possible, through at least the afternoon break. You should take the exhibits down by 6 pm.


While we don’t require you to stay with the exhibits all day, we do hope that you maintain a presence there during the breaks (morning, afternoon, and lunch). We are looking into arranging monitors for the lobby so that people can watch the live video stream while still at the tables and posters.

Senior Health Scientist Administrator
Office of Rare Diseases Research
National Institutes of Health / NCATS

Our most sincere gratitude goes out to Cheryl for her hard work in representing MEBO Research in such a powerful way by not only doing the video on Trimethylaminuria, but also in setting up a table at this event.

María


María de la Torre
Founder and Executive Director

A Public Charity
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maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

1 comments:

aj.mcclay said...

So pleased to see someone doing this, great attitude cheryl. Im really proud!!

Feb 25, 2012, 4:34:00 PM
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