Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, February 27, 2012


Although we are still five months away and the final arrangements with the hotel are still taking place, I would like to announce that the MEBO Miami South Beach Meetup will take place over the weekend of June 22nd through the 24th of this year.

Miami June 22-24 : MEBO meetup are you attending ?

MEBO has been offered a special group rate for our meetup by the Hotel Marseilles, but anyone wishing to attend would need to wait until the arrangements have been finalized and for our group to be added in the hotel's computer system. I am announcing the dates the event will take place so that anyone wishing may make their transportation arrangements at this time for lower air fares. I have personally visited this hotel and was shown their recently renovated rooms, which are very nice. Even though I have asked that our group be assigned these renovated rooms, I recommend that when calling to make reservations, make sure the reservationist makes a notation on your reservation that you request a renovated room.

The Marseilles Hotel
is an original Miami Beach Art Deco style boutique hotel with typical architecture and design features of the 1940's. The Marseilles Hotel has all the peculiarities of the Art Deco style - vertical emphasis and a combination of flat and curved walls, use of glass blocks, neon, cove and porthole ceiling lighting and cast iron railings. While you stay with us, discover the Marseilles' delightful art deco ambiance and see how the past has been preserved to its original beauty.

Our meetup will be held at the following oceanfront hotel:

1741 Collins Avenue
Miami Beach Florida 33139

This hotel location couldn't be better, especially for the price. It is on the north side of South Beach, which is walking distance from the more noisy clubs, sidewalk restaurants and cafe of South Beach and Lincoln Mall, but distant enough that the loud noise will not disrupt your peaceful nap on the hammocks under the palm trees or your good night sleep. Everything is walking distance, including the beautiful warm waters of South Beach.

The following is the agreement MEBO has made with the hotel. The hotel will initially hold 10 rooms for us, and therefore, it will be necessary to guarantee your room as soon as possible, so that if we need more rooms, they will be available with early bookings. Credit card information is taken at the moment the reservation is made to guarantee the $99/night rate, and charged in full at the time of check in (please see extra fees below). The contract is being drawn and signed this week, and soon thereafter, you will be able to make your reservations.

The following are the terms of our group rate:

Weekend of 06/22/12-06/24/12

10 rooms

$99.00 Marseilles

Net, non-commissionable, plus tax, per room, per night


Extra person $10.00 per person, per night

If 10 rooms pick up we can extend one Junior Suite upgrade at no additional charge (where we will meet on Saturday)

Porterage $5.00 pp round-trip - mandatory

Breakfast coupons for use at the hotel’s restaurant offered at a special group rate of $14.00 per person inclusive, per day for Full American Breakfast – plated.

No resort fee

Cancellation 30 days

I would love to show my hometown to all the sufferers and their families in our community around the world. It will be a very memorable experience. Hope to see you all very soon.


halitosis research
María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition


Post a Comment