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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, February 14, 2012

MEBO's Raising Awareness Video Campaign: Living and Working with TMAU


In the spirit of the Rare Disease Day event to be celebrated on 29 February 2912, the readers of MEBO's blog donated $200 in a brief period of 12 hours for MEBO's Community Outreach Director, Cheryl Fields, to create a video to raise awareness about the psychological, social and economic effects of trimethylaminuria (TMAU) on the lives of its sufferers. Even before it was finished uploading on DRSTILLSTANDING's YouTube Channel, Cheryl had wasted no time in sending this video message to key contacts, including the press.

This is only one of many videos MEBO hopes to create to raise awareness of diverse types of body odor conditions, including halitosis, bromhidrosis, and others.
It is our hope that this presentation will inspire sufferers, experts, family, and friends to help Cheryl develop a Community Outreach Network Program that will support sufferers and reach out to employers, community leaders, and many more key elements of our society. The more volunteers from around the world that come forward for this cause, the more we can exponentially reach more sufferers and make a difference in our quest to find solutions.

Thank you Cheryl for you dedication and steadfastness in being proactive in your efforts to change lives.

If you wish to donate to this Raising Awareness with Videos Campaign,
please use the PayPal donate button below, or contact us at staff@meboresearch.org.
Thank you.



This is only one of many videos MEBO hopes to create to raise awareness of diverse types of body odor conditions, including halitosis, bromhidrosis, and possibly others yet-to-be discovered through research. If anyone has any recommendations regarding the expansion of this program, please use the comment feature on this post, or email MEBO at staff@meboresearch.org.




Trimethylaminuria (TMAU) is a metabolic disorder in which an individual is not able to break down trimethylamine into smaller compounds. Trimethylamine is the compound that gives the patient a bad odor (ranging from fishy, urine, feces, smelly socks, etc.). The odor can come from the mouth, breath, scalp, body, genital area, etc. The FMO3 gene provides instructions for making an enzyme that breaks down nitrogen-containing compounds from the diet, including trimethylamine. This compound is produced by bacteria in the intestine as they help digest proteins from eggs, liver, legumes (such as soybeans and peas), certain kinds of fish, and other foods. Normally, the FMO3 enzyme converts fishy-smelling trimethylamine into another molecule that has no odor. For more information, please contact your personal physician, a local TMAU support group, or MEBO Research, Inc., Cheryl Fields, MBA, Ph.D. (C), Director of Community Outreach Programs, (785)-286-7005, or via e-mail: cheryl.fields@meboresearch.org.
tmauinterviewfinal.mpg

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

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