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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, May 10, 2012

MEBO Miami Beach Meetup: Hotel Booking Reminder

Miami Beach Social Meetup
and Conference
23rd June 2012 at noon
TENTATIVE AGENDA (Subject to change)

Although the MEBO Research Meetups are mostly geared toward socializing and having a great deal of free time to bond with each other and enjoy our surroundings, we do dedicate a few hours on Saturday afternoon to hold a Conference in which we discuss the following:

Maria de la Torre, Founder and MEBO Executive Director, Conference Coordinator:
Welcome and brief presentation on who is MEBO Research, its latest developments this past year since last meetup in Washington DC, such as new directors, registering as Organization Members with NORD and EURORDIS, Institutional Review Board (IRB) to oversee MEBO’s current and future research studies, new TMAU test programs in the US and Canada. Goal to register MEBO UK as a charity.
A handout packet of write-ups, reference links, and information on body malodor, halitosis, and bromhidrosis will be provided to attendees.

designed for this Conference

  1. Elizabeth Shephard, Professor of Molecular Biology, Vice Dean Education, Faculty Life Sciences, University College London, UK, MEBO Scientific:

proposed: Slideshow or video on FMO3 and drug metabolism (Yet to be determined)
  • Colin Harvey-Woodworth BDS, (dentist), MEBO Scientific Director (UK):

  • Slideshow on "Dimethylsulfide and its relevance in blood borne malodor conditions"
  • Irene Gabashvili, PhD, MEBO Scientific Director (US):

  • Video on Aurametrix, a tool that can help sufferers understand their personal interrelationship with their diet, medication, daily activities, and body odor and/or halitosis conditions, as well as their mood and feeling of well-being, and thus, to gain greater control.


    1. Mike, MEBO’s Managing Director (US):
      Presentation on the MEBO-Menssana Alveolar Breath Study.

  • Glenna Gonzalez, MBA, MEBO Public Relations Director (US):

  • As a certified life-coach, do a presentation on ways to improve quality of life for sufferers.
  • Cheryl Fields, MBA, PhD (C) (ABD), (Dr. StillStanding), MEBO Community Outreach Director (US):

  • Presentation and Q&A session on employment, workplace, etc., with handouts.


    1. Nigel Manning, Principal Scientist, Dept. Clinical Chemistry, Sheffield Children’s Hospital:
      PDF of statistical update for 2011 TMAU Test data, including,
      • TMAU test requests and TMAU diagnoses in the UK from 1997 to 2011
        1997-2011 [n=1411 ]

    2. Karen James, MEBO Public Relations Director (UK), and
      Stephanie Hinsley, MEBO Community Director(UK):
      • Presentation on Raising Awareness Campaign: Ground-breaking accomplishments in the UK regarding the ten body odor questions on “Nutritional metabolic and endocrine disorders > TMAU” were published in the Database of Uncertainties about the Effects of Treatments (UK DUETs), of which six (6) of these listed uncertainties have referenced their source to MEBO Research (see, "View Details of each question"), and four (4) of them reference the source to the DUETs Editorial Team.
    3. Adrian J. McClay (AJ), Assistant Executive Director (UK):
    4. Brief report on the new MEBO Members area explaining what will be included Questionnaire to assist him in developing a new MEBO Membership area. The questionnaire will provide feedback from potential members on what they think is appropriate or inappropriate content in a Member Registry.
    María de la Torre Founder and Executive Director A Public Charity MEBO's Blog (English) El Blog de MEBO (español) MEBO Brasil - Blog (Portuguese)

    SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays at no extra cost to you. MEBO gets small commission from Amazon. Please use your credit card to make your donation to MEBO.

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