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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, July 10, 2012

Cheryl Fields' Miami Beach Conference Presentation: Seeking Employment


SEEKING EMPLOYMENT

by
Cheryl L. Fields, MBA, Ph.D. (ABD)
Human Resources Consultant
Founder of The Diversity Project
MEBO's Community Outreach Director


Our dear friend, Cheryl Fields, also known as Dr. StillStanding, gave a very interesting presentation at the our Miami Beach Meetup Conference held on June 23, 2012. Her presentation ignited a very lively group discussion that captivated the full attention of everyone present. The discussion and presentation seemed to potentially go on indefinitely, as it continued well passed the allotted time-frame per popular demand.


Cheryl touched upon the dos and don'ts of job seeking, from writing a résumé 21st century style, to the job interview, to on-the-job and work environment issues. We lightly touched upon employment discrimination law, but Cheryl's 20-page paper that she gives us for our perusal goes into more indepth detail.

We thank Cheryl for her very thought-provoking presentation, and hope she will someday do a video presentation on this topic. A heart-felt thank you goes to all attendees who participated in such a lively discussion. Thank you for sharing this special moment with us.

María

María de la Torre
Founder and Executive Director

A Public Charity
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www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

posted by Maria de la Torre on 7/10/2012
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1 comments:

Anonymous said...

Thank you Cheryl !!
Love to see/hear a video or audio discussion on this topic .

Jul 11, 2012, 5:23:00 AM
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