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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, July 24, 2012

TMAU Testing in the UK and other countries

halitosis researchThere have been numerous requests from sufferers in the UK to test for TMAU through MEBO Research. Each time, before proceeding with emailing them an invoice, I point out that TMAU Testing is free through the UK National Health System if arranged by the sufferer's physician. In a few cases, persons living in the UK have still opted to test with the through MEBO, and even though shipping costs are steep to/from the UK/US, the currency exchange works in favor of the UK sufferer. Nonetheless, I would like to attempt to assist sufferers in the UK to obtain this test free from their NHS program. In the end, the decision rests on the individual, and I will accommodate each person to test as he or she pleases.

If you live in the UK, but find it difficult to explain to your physician that you would like to be tested for TMAU, you might find it and easier process if you prepare yourself in advance of your appointment with your physician. You can go equipped with the right informational tools that may facilitate your communications with him or her. Please click on the following links of a few posts that may be of help to you.

ImageChef Custom Images

Another very reliable source that would support your request for TMAU Testing, is the article written by MEBO Research's Public Relations Director, Karen James, in the InnovAiT blog of the Oxford Journals. You may want to show your physician this article as well.

An excerpt from this article also presents the GP's perspective addressed to medical doctor trainees:

The GP perspective
It is challenging when faced with a patient that you do not know how to
help. The curriculum is vast and reflects the level of knowledge GPs have to acquire, and maintain, over their careers. It is inevitable that you will experience patients from time to time with problems that will stretch your knowledge to its limits. As Karen has alluded to throughout this article, it is important to listen to patient concerns, be open-minded, and be prepared to look things up and/or take advice from both primary care and specialist colleagues if you feel that you are treading on uncertain ground.

If you still have difficulty getting your physician to set up a TMAU Test for you through NHS using the above-mentioned tools of communication, and if you wish to test in the United States through the International MEBO TMAU Test Program, please fill out the Requisition Form for testing and shipping cost information.

The cost of the MEBO TMAU test is $150/US dollars plus round trip shipping cost, you can fill out the Requisition Form and I will send you an informational invoice with the breakdown of the test and shipping cost. By receiving the invoice, you would be under no obligation to pay unless you are interested in purchasing this test, at which time you can click on the PayPal button and pay with either your PayPal account or credit card.

Please note that MEBO Research has designed the TMAU Test Program in such a way that anyone almost anywhere in the world can do the test. For more information on other options of testing around the world, please click on the following banner, so that you can best make a decision about what is right for you.


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