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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, August 21, 2012

Alveolar Breath Study coming to London - one weekend only

Alveolar Breath Study coming to London
for one weekend only

In less than three (3) weeks, on September 8th and 9th, the BCA 5.0 instrument will be shipped to London from Chicago, Illinois so that anyone interested in participating in the Alveolar Breath Exploratory Study in London may have the opportunity to do so. There is no guarantee that the instrument will return to the Eastern Hemisphere again, and therefore, this weekend will probably be the only opportunity for Europeans and surrounding countries to participate.

As a separate event and coordinated with Arun's meetup schedule during the Thames Festival, MEBO Research is conducting the Alveolar Breath Exploratory Study test between 10:00a.m. and 12:00pm at the Guoman Tower Hotel, prior to the commencement of the Thames Festival Meetup, which is approximately 6 miles from the Tattershall Castle. It was intentionally scheduled for this time so that some sufferers traveling from distant places, including other countries, could come and enjoy both events in only one trip. Anyone interested in testing, is welcome to fill out the requisition form (see link below).

MEBO Research International
Aveolar Breath Study
Provided by the
Menssana Research Inc

*Below are links to the test results of a participant who volunteered to share them with us so that we may have a better idea of what to expect. We hope to receive normal ranges from Menssana for comparison although this was not our agreement with Menssana. As noted in previous posts in this blog, the final interpretation of these results will not be determined until after the one-year study has been completed.
  1. *Alveolar test top 20 VOC's for one volunteer's sample
  2. *Alveolar test full list of VOC's tested : another volunteer's sample
  3. *Alveolar test chromatogram of another volunteer's sample
If you have additional questions please read all posts on Alveolar Breath Study, and if your question is unanswered, email us at

The following posts have additional information on the exploratory study.

London Alveolar Breath Exploratory Study & Arun's Thames Festival Meetup 2012

Update posts on Alveolar Breath Exploratory Study (Click and scroll down)


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