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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, August 5, 2012

Anecdotal body odor story in UK Daily Mail newspaper

Story in UK Daily Mail newspaper yesterday

You Smell! Grandmother, 61, calls police to cafe after waitress tells her that she pongs

Daily Mail body odor story

"A grandmother called the police on her local cafe because a waitress made a comment about her bodily odour.
June Morris, 61, was outraged when a young waitress at a cafe in Blackwood, South Wales called her smelly.
Mrs Morris was so upset she dialled 999 to make an official complaint about the insult - claiming it was a verbal assault..."

full article : Body Odor story in Daily Mail

While to non-malodor readers it may be an amusing story, it does show how emotive such accusations can be. There are many questions about the story, such as did the lady smell and/or does she have a metabolic malador issue that she was unaware of ? There are so many questions about the story but unfortunately like so many body odor incidents we are left wondering rather than learning anything useful.


Anonymous said...

Would a waitress get away with calling anyone ugly , fat , or having an odd voice. A bully is a bully, she should not get away with this.

Aug 6, 2012, 2:14:00 PM
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