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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, September 13, 2012

Thames Festival 2012 & Paralympics



It was a pleasure to attend the Thames Festival Meetup 2012 and to meet many new people and the lovely people I have been working with on the various MEBO Research projects for the past year(s). I keep playing over and over again in my mind the different conversations and experiences we shared in this event, and reliving how happy I was in the company of my dear friends. Thank you to everyone who made it possible for me to take special memories home with me.

While I was in London during the meetup, the Paralympics were taking place. The street around the Tattershall Castle was blocked off for the marathon, and unfortunately, I missed this event. Nonetheless, we could see the street on the pictures in the slideshow above where it all took place.

London is a beautiful city, and it was particularly colorful during the whole of the Olympic events and Thames Festival. It was a pleasure and a privilege to have been in the midst of these events.

The following are links to the topics of conversation we shared (scroll down to see the various posts in each category):

  • Flavin monooxygenase enzyme (FMO3)(scroll down to see all posts)

  • POWERPOINT PRESENTATIONS:
    1. Dr. Elizabeth Shephard's presentation on Pharmacogenetics & Personalized Medicine for the MEBO Miami Beach Conference/meetup 2012.
    2. Professor Elizabeth Shephard TMAU/FMO3 slideshow presentation for the MEBO Washington DC Conference/meetup 2011.
  • Bromhidrosis

    1. Powerpoint on Bromhidrosis for Washington DC Conference/Meetup 2011
  • Aurametrix

    1. How to count choline
    2. How to count sulfur
    3. How to count FODMAPS
  • Interview with experts

  • 'Sweaty feet syndrome' : 2006 paper on Isovaleric Acidemia

  • Foot odor

  • Microbes and Us

  • The 4 "R" Protocol for suspected dysbiosis

  • List of the pH of common cleansers (soaps)

  • Do they smell me or not?

  • Videos


  • María

    María de la Torre
    Founder and Executive Director

    A Public Charity
    www.meboresearch.org
    www.brasil.meboresearch.org
    maria.delatorre@meboresearch.org
    MEBO's Blog (English)
    El Blog de MEBO (español)
    MEBO Brasil - Blog (Portuguese)



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    A EURORDIS and NORD Member Organization

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